Excessive sweating

[Jamie345]

I have excessive sweating through the night my gown is drenched every morning when I get up, now it's occurring all day not as severe as the night! Is this caused from predisinone I'm on 15m I expect my rheumy to suggest I taper down again when I see him on Monday, I've felt so much better on 15 m best I've felt since this all began and the tapering down until now made me feel really ill that I was beginning to think I had cancer ! If any one can help me here please.

[SheffieldJane]

It is a Pred side effect. I got it but much less severely. Mine was confined to my scalp and chest mostly. What you have is more reminiscent of the Menopause for me. A portable fan might make you more comfortable and wearing cool natural fibres. It does pass when you are on lower doses. Personally, I think it is better than the pain and stiffness. Mention it to the GP, but I wouldn’t want more drugs. I used to put my hands in a sink of cold water for a couple of minutes, up to the elbows. It seems to cool the blood.

[DorsetLady PMRGCAuk volunteer in reply to SheffieldJane]

You only need to let cold water run over inside of your wrists, where you take pulse - to cool off! It’s surprising how quickly it works!

[Jamie345 in reply to DorsetLady]

I sweat all over my torso neck hair when I awake in the morning and now I've had it during the day but not as bad, I will try that on my wrist during the day though so thank you .

[Jamie345 in reply to SheffieldJane]

I definitely don't want more drugs, I do where cotton nighties during the day it comes and goes like the menopause so I can handle it but wish I did not have to ofcourse! I'm still not out of pain but I am feeling better than I did, tapering down so don't know how things will go then, it's a very surprising condition to say the least, thank you for you advice, everyone.

[SheffieldJane in reply to Jamie345]

I am glad you are feeling better than you did jamie345. I found it a bit embarrassing, my forehead would bead with sweat if anyone so much as spoke to me, as I attended a lot of Playgroups with my grandson, that was often. I thought they were thinking, “ poor old thing, can’t cope with a baby”.

[PMRpro Ambassador]

It can be from prednisone - or it can be from the underlying autoimmune cause of the PMR/GCA which isn't affected in any way by the pred and just chugs away in the background. For me a return of sweats is a sure sign I'm hovering about the lowest dose I need.

[Rocketronzy]

I used to have realy violent night sweats as you.

I told the doctor. She sai well it was wam last night. 😱

If it comes about again I’ll take my soddend garments to the doctors 😤

I always felt mine was due to coming down far too soon.

Off prednisone 😬

[SheffieldJane in reply to Rocketronzy]

😂😂😂

[Jamie345 in reply to Rocketronzy]

Thank you Rocketronzy it's horrid to keep waking up soaking wet need to go straight into the shower, but at present I'm not having a lot of pain I will have the sweats anyday compared to the pain going round my body, anyway good luck to you as well,

[Rocketronzy in reply to Jamie345]

With my sweats I had chest pains and it was mainly the chest aery. Told the lady locum doctor about them which she replied that an a & e call so the following day or so that’s what I did.

After bean there all day booked in upstairs. The more experienced doctor decided it was a bad flare.

Upt mi dose of prednisone to 15 from

5. Haven’t had one since

Doctor wasn’t happy about increasing

😲

Later on bl@@dy Rumi poo pooed the

Hospital doctor 😲😬😤

You know we couldn’t make stories up

Like this

Wish I could we would be writing best sellers

All the best to you all

🍀🍀🍀🍀🍀

[PMRpro Ambassador in reply to Rocketronzy]

Good at cardiology is he? Like a friend who was admitted for severe atrial fibrillation (heart rate of 230 at the time) - discharged on aspirin 4 hours later in the middle of the night. By a diabetes specialist. Excellent. Luckily her GP was rather better informed.

When I had a similar episode in hospital they wouldn't let me home until I was already set up on warfarin. Same happened for my husband - although he was already on warfarin. Aspirin for a/f my foot!!!!!

[PMRpro Ambassador in reply to Rocketronzy]

You do at least have a known reason for sweats.

Sounds like the idiot GP who told my joiner he must have flu when he went to ask about repeated drenching night sweats. The first thing that should have come to mind in his case was cancer (sorry to be so cheerful) and once that had been ruled out a load of other things applied. As it was, it turned out to be an infection that was affecting his heart which kept him in the isolation ward of the local hospital for a month or so - and if it had been left much longer could have killed him.

"It was a bit warm last night" - for goodness sake!

[Celtic PMRGCAuk volunteer]

Jamie, I think the night-time sweating is the worst to experience, not least because it can affect our sleep. However, although I experienced horrendous night sweats prior to diagnosis, once on steroids the night-time sweats were very much better. The daytime ones continued and when at its worst I would don a sweat band to at least catch the drips before going down my face and neck. I wore all cotton clothing. If you drink coffee, avoiding it can help, as can avoiding chocolate and alcohol and spicy foods, and switching to decaffeinated tea. It should improve as you reduce the doses, although strangely my sweats worsened for a short period following each reduction, and also bizarrely after a main meal!

[Jamie345]

Thank you for your reply, I find it is very uncomfortable at night, it just seems to get worse and sweating during the day even though I'm out and it's cold still occurs especially with only a little exertion, but I will speak with the rheumy next Monday.

[Neverending63]

My sweats/hot flushes aren’t confined to the night, I can get them at any time over a 24 hour period. I can feel it building up until it crescendos. Feels like a volcano about to erupt then it dies down again until the next one lol. One minute boiling hot next minute freezing cold. Someone needs to invent clothes that can read your body temperature and adjust their thickness accordingly 😁

[SheffieldJane in reply to Neverending63]

Marks and Spencer’s have a few things that claim to do that, like tights, underwear and tops. The tights are good. Cannot really vouch for the rest.

[Neverending63 in reply to SheffieldJane]

I will have to have a look. Don’t wear tights as I never wear skirts due to scars on my knees but will definitely look at the other things ty x

[Hidden]

A bed side fan has been my best friend together with a 1 tog quilt. Put a 3/4 full bottle of water in the freezer. Wrap in tea towel and put next to your bed. When you wake hot put it on your wrists for 30secs each then the back of your neck for as long as you can stand. Refreeze and repeat the next night.

[Jamie345 in reply to Hidden]

Thank you I will try that tonight, in fact I'm going to try cold compress during the day like now! Many thanks

[SheffieldJane]

I love a fan breezing over me at night. I have only just put it away. I was no worse in 30 degree Australia but developed curls and tendrils round my face.