Been on 20mg of pred now for three weeks due to a flare up and the pain in my hips,back and legs are just awful.
I woke up at 3am to the most dreadful pains in my thighs and hips and stayed awake all night despite taking a Zopiclone sleeping tablet (been on these for nine months now and read somewhere that coming off them may make me a bit psychotic (lovely,on top of the bonkers episodes I get when on higher doses of prednisolone)
Yesterday I did some light work in the garden and within minutes sweat was trickling down my neck from my head and my shirt was soaked through. (Never was really much of a sweater before I got this dreaded GCA/PMR)
I feel extremely tired all the time and the symptoms seem to be getting worse with each episode, but I still remain positive that things will improve one day. The only positive at the moment is that I look a picture of health but this can make it difficult with friends and family as my grandmother used to say, my looks don,t pity me!
Given that 20mg is quite a high dose for PMR I really don,t understand why I can,t get this dreadful thing under control.
Has anyone else had this???