Thank all you wonderful folks who replied to me, you helped me so much!
I did get some sleep last night and felt better after taking 5 mg of prednisone on top of the 40 I take in the morning. Concerns are not all gone though. Maybe I will hear from the rheumy today, I’m mostly going to rest to get ready for the specialty opthomologist appointment tomorrow. Getting angry didn’t help my head yesterday! My sister is taking me to the appointment and it’s a ways away and a stressful drive.
Has anyone had a shot of prednisone with a flare like seems to be going on with me instead of raising the dose higher to 50, 60, etc? If this works it seems like it would be better in that it wouldn’t add to the length of time being on a such a high dose. Is this only done in the ER? Should I ask the rheumy about this option. Or maybe just take the additional until things settle a bit.
I’m wondering what the doctor will check in my eyes tomorrow. I know she will be doing tests, I will be there all morning. It is a clinic connected to a university medical school, so I have some confidence in it. How have you all fared at the opthomologist?
Thanks again for all the warm and concerned replies from “the aunties”, (if there was an uncle in there, thank you too).