PMR and Mgus

[Lyon70]

Hi Everyone,

This is my 3rd post, diagnosed PMR in August 2017, started on 25 mg Pred got down to 12.5 but now back to 18mg.

Had severe shaking and nausea up until

A few days ago after Rheumy prescribed

Arava (Dmards). The shaking has stopped and nausea is subsiding.

I have also been diagnosed with Mgus,

Does anybody else have this blood disorder.

Thank you to all the helpful, kind people on this site, I have learnt so much from reading your posts.

Best wishes to you all

Denise😊

[SheffieldJane]

Hi Lyon and welcome to this site, so glad you found us. I had not been familiar with the condition that you have Mgus and the medication you have been prescribed DMARDs. I looked them up briefly - not much further forward except that Mgus can be asymptomatic.

As the expertise on this site mainly centres on PMR and GCA, I would be interested in how your PMR has been affecting you. I have just clocked that this is your third post. I was struck by your high starting dose for PMR and your needing to go to 18 mgs from 12,5. I expect that these questions might be answered in your previous posts. What you are looking for is others who have been diagnosed with the blood disorder Mgus and perhaps have experience of DMARDs the medication . Not sure where the shaking and nausea came from. Does your Rheumie think it was Pred related?

[Lyon70 in reply to SheffieldJane]

Hi Sheffield Jane, when I was diagnosed I was unable to get out of bed, my pain has been in my feet legs and buttocks,

I was on 15mg but it was increased to 25 very quickly.

I was down to 12.5 by January,

But pain gradually came back.

18mg is working at the moment

[SheffieldJane in reply to Lyon70]

I am so glad that you have found your optimum dose for now. As others have said, the nausea and shaking can come from Pred side effects and the dizziness and yet you obtained relief from a drug for another condition? Those symptoms for me were fleeting.

It is probably too early in the morning for me to think straight but I am not feeling the recognition I usually feel when PMR sufferers describe their symptoms. Wishing you well!🌸

[Lyon70 in reply to SheffieldJane]

The Arava is to be taken with Pred, to help with the Polymyalgia . There are no symptoms or treatment for Mgus, it was picked up incidentally in my poly blood tests.

I am only being treated for Polymyalgia rheumatica.😊😀