In my continual pursuit to educate myself I have bumped into some good resources. Hope they might help others too, so sharing.
This is a lengthy but thorough article on GCA. You’ll note that many of the studies shared on PMRGCAuk are cited.
This is a document that might assist when advocating for oneself with docs:
On another note, I made the decision today to start Actemra. After 3 flares and unable to get below 20mg Pred I decided it was time. Hoping it’s a new chapter on this PMR/GCA journey that has lasted 7 years for me so far.