Hi, Getting a bit panicky maybe!
I've read a lot of your good advice on here but have never felt the need to seek it for myself til now. Last August I went my gp with jaw pain and tenderness in one temple. After trying to find a non existant pulse in my temples,he suspected GCA and started me on 40mg prednisolone.He sent me for a temporal biopsy ... the results backed up his diagnosis. He admitted he knew little about gca so he phoned the rheumatology dept at local hosp,who in turn sent a letter to him and me,setting out the reducing dosage (dropping monthly at 40-30-20-17.5-15-12.5-10 then by 1mg per month) I am now down to 2mg and due to drop to 1mg next on friday...eeek!! (so pleased but weirdly anxious!! )
I go for monthly blood tests at my gps (but have never met a rheumy) Results have so far been good with only slight rises,none big enough to warrant upping the pred.
I am 58 and have suffered from lower back and joint/thigh/groin pain for around 20/30 years but it has got much worse lately esp the groin and joint pain and I am wondering if this could be PMR? Now I'm also having slight neck tweeks and stiffness but not sure if I am just noticing (or looking!!) for symptoms because I'm scared of coming off the steroids totally. Or is it just because I've had the euphoria of having NO PAIN whatsoever!!!... and feeling like I had the energy of a seven year old whilst on 40/30 mgs pred!!
Is groin pain likely to be pmr? My gp puts the extra aches and pains down to coming off the steroids. With my crp levels up a little,he said he toyed with the idea of putting me back up to 8 mg but that it would then take me 8 months to get back down again when I'm almost down to nil.
I know I've had a really easy ride on this gca journey compared to so many on this forum.
Good wishes go out to all who are stuggling with this condition.