First of all, I'm pleased to say that my recovery from having a wisdom tooth taken out is going well. Obviously the whole mouth is sore but, after the unbelievable pain beforehand, I can cope with this with just the occasional paracetamol.
So, today I had my four week check-up with the rheumatologist. She's not the most empathetic of consultants so I decided to be "business-like" myself and made a list of my questions and worries. I explained that I was feeling worse taking 40mg Pred than I had on the original 15mg and that the dizziness and spaced out feeling was making it very hard for me even to leave the house. I asked her about the scan, which I know isn't easily available but which is helpful in diagnosing GCA but, she had either not heard of it or she had decided not to answer my question because she suddenly said that I obviously wasn't responding properly and she booked me in for an MRI scan. When I asked why, she said it was to rule out either an aneurysm or a tumour - not what I wanted to hear!! She then looked at the results of the blood test done two days ago and said that the results were much better overall and that CRP was now 2. Not sure what that meant but, whatever it was, she wants me to start reducing from tomorrow. The regime she has given me is:
1st month - from 40 to 30
Next month - from 30 to 25
Next month - from 25 to 20
Next month - from 20 to 15
Next month - from 15 to 12 and a 1/2
She then wants to see me at the end of the month following this last reduction. I presume, providing all is well, she will give me the regime for the next steps. She also said that it often takes two years to reduce but that some people take longer.
Now, I've been looking at the Dead Slow method but, as far as I can see, this is from a starting point of 15mg, I'm not sure what to do starting from 40mg. Would one of you knowledgeable people let me have your opinion on this please?
Again, thank you all so much for your support and advice.