Have read your posts with great interest over past few months. I am a 65 year old man, diagnosed with PMR last August. Started with neck pain, then hips, shoulders, hamstrings till entually most of my body had joined the PMR party. GP and I were tending towards Fibromyalgia but fortunately Rheumatology suggested PMR and pred. Started on 15mg of pred and went from chronic pain and stiffness to fully functioning within 1 day - it seemed miraculous!
I followed the rheumatologist recommended taper with 4 weeks at 15, 12.5, 10, 9, 8 etc, until 5 mg. I was on my 6th week of 5mg pred thinking ahead to next reduction, when neck pain returned, then shoulders and arms. I increased to 6 mg, still pain, then 6.5 mg, still pain and currently at 7.5 mg but still not totally pain free. Should I bite the bullet and go back to say 10 mg? I am still active- walking and some kettlebells- determined not to let this condition define me or defeat me! I have noticed that I am a tad more fatigued recently though. Thoughts kind people?