Hello all, I was diagnosed with PMR in July this year following a badly infected surgical wound. I was amazed how quickly symptoms appeared, day 1 some ache in right shoulder, Day two both shoulders and upper arms painful, day 3 agony in arms, shoulders, elbows, knuckles, hips and back. Couldn’t turn over in bed without pain which made me cry out ! I am a 53 year old male, previously overweight but fairly fit. Go started me on 40mg of Pred and told me to taper by 5 mg every 2 weeks and said cutting from 5mg to 0 would be difficult.
I got down to 15mg and hit a brick wall with re emergence of symptoms which forced me to increase to 20, then 25 to settle things again. I still feel I’m on the ‘edge’ as I have slight aches in shoulders and knuckles even on 25mg! I seem to be on a much higher dose than many appear to have started on which scares me!
I haven’t been to the gym, cycled or hit 10k steps for months although I’m working still, but have noticeably less energy. The Pred has made me feel I’m always hungry and I have gained weight as I can’t stop eating! I was diagnosed with type 2 diabetes at the same time which has been hard to get to grips with due to continued hunger pangs!
My go has not followed up and I haven’t seen her since diagnosis, should I go back and tell her about Pred increase? Is 5mg too much cut each time and is it too early to think about reducing? How long does this acute phase last? Or is it always like this!
When will I get some energy back?
Any advice would be appreciated please. Thanks