I've been avidly following this forum since mid November & have already been greatful for advice on another post I wrote. I've been for my rheumatology appointment today & would be interested in your thoughts.
To give a quick insight into what's been happening - i haven't felt "well" for nearly 2 years but as I'm 53 I've put it down to the menopause. My GP early last year was really good & did some blood tests & also referred me to another GP in the practice who specialised in rheumatology, as my aches & pains could have been rheumatoid arthritis. It was decided it wasn't and it was after all due to my age.
Fast forward to November 2016 - one evening I had the most awful pain in my left eye, like I had a piece of glass in it. The following day I had a severe headache, went to the pharmacy, who sent me to an optician, who sent me to eye a&e. There was a little bit of swelling on the optic nerve but nothing serious but I was sent to have blood tests. I went back the following week for a follow up & was sent to normal a&e to be admitted. My ESR was 32 &CRP 50.4. I had a ct scan which showed I had a sinus infection & was put on antibiotics & steroids. Since the. I have had an MRI & left temporal lobe biopsy plus more blood tests.
I felt pretty good after coming out of hospital but since a couple of weeks before Xmas I've gone downhill again. My shoulders hurt, my hips & elbows are sore on the bone & I wake up every night with numb hands but the worst thing is the constant headache going from one temple to the other & behind my eyes. My eyes feel like they are straining all the time & seem very sensitive to light. My vision just doesn't seem "right". I feel exhausted too.
Results today - MRI & CT normal apart from showing a sinus infection. Blood test shows inflammation down. Anca test normal. Biopsy negative
Rheumy said not GCA but possible PMR. To be in the safe side he has referred me back to opthamology to check my eyes & also referred me to neurology for my headaches & the fact I have a tremor on my left hand that pulls the little finger & ring finger over to the side.
Rheumy sent me for blood test straight away to check for inflammation plus he's included a rheumatoid test. He's prescribed a months worth of Pred (15mg a day), which I'm not to take until he calls me with blood results as if there isn't inflammation I won't need them.
I'm pleased the results are normal/negative but so disappointed I don't know what's wrong.
I'm sorry I've rambled on but had to get it off my chest!