This is really an update on me but also a bit more advice needed I think. Following my flare/reduction issues about a month ago I have been on 12mg pred. My inflammatory markers were normal but my rheumy nurse said I could go on 10mg and stay on it until Christmas. After a few days on 10mg I felt no better so increased to 12mg. I haven't told them but my GP says to adjust it myself according to my symptoms!! I still don't feel brilliant...I feel like I am permanently getting a cold but not severely! It's weird. My shoulders have stopped aching since I upped the pred, so that's good, but I am still so tired and am still getting the odd headache, although not the same as pre diagnosis. These headaches involve a tenderness over the back of my head and are treatable with paracetamol. My eyes feel really heavy and my eyesight has deteriorated a lot since diagnosis almost 2 years ago now. I now need my 3rd pair of specs but before that I have been referred to the eye hospital for further tests. I also get the odd touch of jaw ache but it seems to be toothache too. A general feeling of 'unwellness' is how I would put it. I think I have coped reasonable well so far but it is now starting to get me down a little because there always seems to be something else and I can't keep whining to my friends!!!
At the moment I am on 11.5mg of pred and am still taking the Alendronic Acid, Vit D3 and Calcium , along with Omeprazole, Aspirin.....oh and levothyroxine and my inhalers!!!
Sorry to be a bit of a moan...but it does help to write it all down.