just thought I would update where we have got to with Joyce's GCA.
She has been on 10mg of pred, having reduced slowly over the past months, for the last few weeks and has been very poorly , no energy, sleeping a lot, tearful, in fact almost as she was before she lost her sight.
Saw the GP a couple of weeks ago who said the ESR was OK and she was depressed. He prescribed floroxatine but this hasn't seemed to help.
Anyway saw the rheumy yesterday who was much more understanding. He has increased the pred to 30mg dropping by 5mg every two weeks also methotrexate 10mg once a week and 2 weekly blood tests. Also made appointments to see a rheumy nurse after Christmas and him in 3 months. Also he has given us a phone number to contact his secretary if we hit any problems.
So feeling a bit more positive today that our concerns have been listen to.
Starting the higher dose of pred today so we will see how it goes.