Ok here goes, not having a great time of it lately. Retired on ll health end of March and had a couple of months of feeling quite good. It was if the stress of work no longer being there just made me feel so much better. It was quite stressful getting to the retirement point! Anyway I was on 15mg of pred at this point, had been up and down a few times! Started a fairly slow reduction, 1mg every 6 weeks and when I got to 11mg felt really bad again. Stuck it out for a few days before contacting rheumy who advised going back to 15mg for a few days and then return to 12mg. Did that but still feel rough, painful shoulders, hips knees and getting fatigued quite quickly. My muscles ache a lot, after a walk around one of the local NT gardens a couple of days ago my legs feel like I've run 10k. Worse in the mornings and eases as the day goes on. Very frustrating to have been in such a good place for a while and now feeling like crap. Just not sure what to do now, seeing the rheumy again on the 6th September. Oh and all the while I've still been taking 10mg of leflunomide a day plus alondronic acid once a week and adcal d3 twice a day.
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