I haven't posted for a long time. I was diagnosed with GCA in May 2014 with very high levels of CRP, ESR and a positive temporal artery biopsy. I was put on 4Omgs of Prednisone and responded miraculously within hours. I found our wonderful web site, read everything including the book, changed my lifestyle and ate only healthy low carbohydrate food. I also had daily Manuka Honey. Other than a few minor hiccups when I came straight to the web site to find the answers I got on with my life, went to Australia and had other wonderful holidays. I was down to 3 mgms in March of this year when I had a flare. It came quite out of the blue and I didn't recognise it at first put in down to travelling to the Maldives and spending time snorkelling but the headaches got worse so when I got home I saw the Rheumatologist and had to go back up to 20 mgms. It was such a shock as I thought that I had smugly beaten it but I have to admit I had slid back to my bad old ways, not looking after myself, not having enough rest, not eating healthy food and not treating alcohol with respect.
I am now down to 10mgms but my CRP is still high so I have to stay on it for a further 6 months before trying to reduce again. It's hugely frustrating and I still have the tension in my head, which others have described as a steel band but I am not too bad and compared to others I am incredibly lucky. It's supposed to burn itself out in two years but mine is obviously going to take longer. What I have learned is how important it is to take care of myself and listen to my body.
So all of you out their look after yourselves as well