Hello you lovely people.
This is the first time I have posted so I'm a little nervous. I was diagnosed back in April of 2003 with GCA/PMR - at the tender age of 53. No biopsy because GP and Ruemy started me at 60mg Pred immediately. I have never worked since (now retired). Within those years I've had a few 'mishaps' - Bacterial Meningitis - wet AMD in right eye (now have a hole in the retina after having 21 injections in this eye over 2 years) - dry AMD in left eye - mild heart attack. But at the age of 65 I'm still here - I'm just a stubborn old bird really. Still taking Pred but usually on 4mg unless I have a flare. I've tried MXT(?) but it didn't agree with my liver so I'm staying on Pred.
My question is this. One of my brothers (I have four), developed PMR also at the age of 53. Has anyone investigated as to wether these illness run in families. My parents seemed to be free of them but they both died fairly young, Mum Was 58 and Dad was 67.
I have learnt more about these illness from this wonderful group than from any doctors/web sites/etc. It's so nice to know I'm not alone in East Anglia!
Sorry about my long winded post.