As there have been no recent posts on this I'm raising it again. PMR 3 years. I'm on 3.5 prednisolone, reducing currently to 3mg. For years before PMR I had fluid retention just in my left leg, but for ages since PMR I have it in both legs and feet, all the way up the legs, and have had fluid on my lungs in the past. I know when it's there. I'm asthmatic but it's a different shortage of breath, first diagnosed after an x-ray.
My local medical centre called me in for a routine BP test, and the nurse suggested I made an appontment with a GP which I have in a few days. I'm now taking furesomide, sleeping with my feet raised in bed, drinking water, not drinking tea or coffee. Have cut out sweet things, except for jam, and I don't each much of that, and cut out alcohol, and processed cold meats. I'm trying to exercise. It's a catch 22 situation: I know I must get more exercise but I feel so heavy and it's hard work, (just over 20 stones when dressed and with shoes on). That's the heaviest I've ever been. 6' 7" tall, normally about 18 stones, but before PMR have been down to 16 stones, but normally 18 stones. Aged 71, normally active, but fluid retention has slowed me down. Go down stairs one at a time, or backwards. Have to press down to get up from sitting or out of bed. Knees hurt if moved more than 90 degrees. Apart from going to the doctor, can anyone give me hope that things will get better?