I was diagnosed end of March with temporal arteritis. I was started off on 40 mg of steroids and been reducing. Currently just started on alternate days of 10/15 mg. I saw my consultant this week and when I said I had suffered tender scalp and headache after 2 weeks on 25 mg and again after 1 week on 15 mg she said that was quite normal. If it wasn't for reading other people's comments I would never know what is supposed to be normal.
I have been left to follow a reduction programme off a sheet which is really for PMR. I don't need to see consultant for 4 months - is this what other people have experienced? How often would you recommend having blood tests? Feeling tired and headache today so need some reassurance!