Hi. I am a 65 yr old male diagnosed in December 2015, although I believe I have now had PRM for about 18 months. I was pre diabetic controlled well by weight management and daily exercise including mountain biking , walking and exercise classes at the gym.
I was diagnosed by the rheumatologist after seeing the GP over many months and constant blood tests. Rheumy put me on 15mgs of pred reducing to 12.5 on which I had a severe flare and put myself up to 30 mgs which put a lid on it after 3 weeks. However since then I have reduced down to 7.5 and felt pleased with myself. As I have a 6 monthly review with Rheumy on Wednesday I asked for a blood test at the surgery, the following day I had a telephone call to see the Dr , which happened yesterday. She told me my CRP was high at 10 and to increase pred to 10 which I have done. 6 weeks ago I had a cataract removed, which was accelerated by the steroids, and since then my mobility and energy/strength have been affected/reduced, but I went on reducing the pred albeit slowly and by point 5s only.
The Dr seems to be concerned about the diabetes aspect, she added to my meds by including Metformin which has counteracted my blood sugars being affected by the pred, and has taken it down to below diabetes level.
She wrote a letter for the Rheumy asking if he would use an alternative immune supressant named methotrexate.
Has anyone any experience of this as a steroid sparing agent?
I have a feeling that I should have listened to my body more closely and increased the pred when the eyes were operated on and should have actually stopped reducing for longer.
Thanks for any advice and best wishes to all sharing this journey.