New Diagnosis: Hi everyone, Many months ago i came... - PMRGCAuk

PMRGCAuk

21,030 members39,701 posts

New Diagnosis

yorkshiregirl44 profile image
3 Replies

Hi everyone,

Many months ago i came on this site when a specialist thought i had PPRG and i was started on a weeks trial of steroids which made no diference.

Moving forward i have now been diagnosed withh primary progressive ms. My specialists and myself were going down the wrong road completley. Its a releif to finally get a diagnosis and hopefully treatment for my symptoms although there are no meds that can slow down the progression of ms.

I thought i would post this as it could help others when trying to get a diagnosis when sometimes symptoms and test results are overlooked.

Thanks Christine

Written by
yorkshiregirl44 profile image
yorkshiregirl44
To view profiles and participate in discussions please or .
Read more about...
3 Replies
PMRpro profile image
PMRproAmbassador

Sorry to hear the verdict in the end - and I do hope they are able to relieve at least some of your symptoms. I do know what you mean about the relief at getting a diagnosis and label even when it is a not entirely pleasant one.

Ocrelizumab is looking hopeful for PPMS and it was expected to be submitted for marketing authorisation about now - so fingers crossed that it does turn out to be helpful in slowing the progression.

All the very best to you for the future.

Rose54 profile image
Rose54

Hi

Thank you for keeping us updated and wish you well in the future .

Take Care

Rose

Ronswife profile image
Ronswife

So sorry for that diagnosis you received. Thank you for posting as we all want to learn and these auto immune diseases are so unpredictable.

Not what you're looking for?

You may also like...

Muddled Diagnosis

Given the frequency of postings on this forum about challenges diagnosing chronic autoimmune...

New. definitive diagnosis

Hello to all Its been a long time since I have been on the site, and things have turned I was...

Diagnosis Advice

Hi All, I joined this forum mid last year as I was struggling with some issues and thought PMR...

Unknown Diagnosis

Recently seen Rheumatologist. Again, she states it is not PMR. She doesn’t know what is causing the...

How long did you have PMR symptoms before your Diagnosis?

Thinking about how long I had PMR symptoms before my Diagnosis, the best I can come up with is...