In February had sever headache and strange sensitivity around scalp - a hairdressers appointment was extremely uncomfortable. GP had no idea 'come back if you get worse'. 2 weeks later returned to see a different GP who reacted quite differently - said he needed to suspect temporal arteritis - warned of risk of blindness and prescribed 30mg prednisolone daily. After 4 days when I reported some improvement he said he would refer to rheumatology - the same department I see for rheumatoid disease. Waited 2 weeks for appointment to be told too late to do a biopsy, but was concerned that I reduce the steroid dose. 30mg was just keeping symptoms under control, but within days of reducing to 25mg pain was so severe in temporal area GP said go back to 30mg, but try to reduce again after a week. 4 weeks on and still no indication that I will get a proper diagnosis. My GP has been doing his best to manage the situation, and trying to get a response from the hospital, but with Easter and now another bank holiday, nobody seems to be available. Has anyone been in this situation? Any advice?
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