Chill attacks: Tiptoeing into 6.5 mg territory. So... - PMRGCAuk

PMRGCAuk

21,324 members40,438 posts

Chill attacks

HeronNS profile image
7 Replies

Tiptoeing into 6.5 mg territory. So far, so good. The main thing I'm noticing - people here often post about having sweats. What about the opposite? Sometimes I feel so cold and can't warm up, and then other times I'm nice and warm (although not so warm as to get the sweats). Is this caused by wonky thyroid or something?

Written by
HeronNS profile image
HeronNS
To view profiles and participate in discussions please or .
7 Replies
PMRpro profile image
PMRproAmbassador

Don't know - I had about 3 months when I felt cold all the time - or more to the point it started by not feeling the heat in China and when we came back and it was still mid-30s centigrade, then I started to feel cold as soon as the temps fell in October. I put on weight, my hair and skin were as dry as a bone. But when I finally decided it was time to ask the doc - the thyroid test was perfect. Now I have the sweats again - not sure which is more disconcerting to be honest!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Hi Heron,

Not sure about thyroid, but I think because the Pred curtails your normal adrenal functions somewhat your body doesn't adapt to lots of things it used to automatically. Whether that be hot, or cold, or whatever.

I find that if I eat in the middle of the day, even just a snack, and try to do anything much, like walking round the shops staight afterwards I feel tired. and I'm sure that's because the adrenaline doesn't kick in when I'm eating as it should. If I sit for half an hour after eating, and then do the same activity I'm fine!

Just a theory!

polkadotcom profile image
polkadotcom

I don't know what causes it, but I have had the same problem on and off all through, and since the worst of the chills were pre-Pred have just associated it with PMR.

I well remember one very cold Easter - I had been out shopping and came home feeling very ill and within 5 minutes was in bed fully dressed - including my coat - with 2 hot water bottles keeping me company.

I just bundle up until the worst is over and I am warmer again. It's a horrible feeling because it is not a 'normal' cold. I tried to explain that to my husband last summer when he found me wearing two dressing-gowns and a hoodie - he was in fits of laughter.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Aah , the sympathy of loved ones! Gets you every time doesn't it?

HeronNS profile image
HeronNS

I saw recently that heated gloves are available. :D I'll try to pay attention to when these episodes happen. They might be associated with eating, and there just not being enough tinder in the old fuel box.

HeronNS profile image
HeronNS

Not related to eating. I woke up in the night and was so cold that I put on a thick dressing gown (over flannelette nightie AND pajamas, and under flannelette sheets and two blankets). And still shivered. And, yes, our heating system is functioning!

Nap1 profile image
Nap1

I do both sweats (mostly) but now I am also getting cold. So your guess Is as good as mine

Not what you're looking for?

You may also like...

sweating

I have been off prednisone and actemra since mid July this year. I keep having sweats. On even...
alvertta profile image

Uncomfortable day time body sweats

First aware of the start of PMR in Autumn 2020, but with Covid restrictions and NHS delays, not...

Sweats? Flushes?

I started to write this as a response to Yorkshiregirl's post about her hot sweats - but have...
PMRpro profile image
Ambassador

Head sweats

Hello everyone, have just joined this site, I have had Pmr for three years now, and have suffered...
Eastender profile image

Is there a beginner's guide to the symptom cycle?

Hello fellow club members, and my thanks and appreciation to everyone who has contributed to this...
Brizzleben profile image

Moderation team

SophieMB profile image
SophieMBPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.