Hi everyone, I'm new but so glad to find you all here! I am a type 2 diabetic, already with the beginnings of macular degeneration and retinopathy. Just before Christmas I had bad double vision and headache and to cut a long story short, had a temporal artery biopsy for GCA (don't know results yet but they have given me the GCA diagnosis anyway). I was put on 80mg prednisolone even before the biopsy, which actually worked wonders. But I was told to reduce to 60mg per day one week ago and since that time the headache is back, some eye and jaw pain and the vision dips in and out of cloudy, especially in the evening. So although it is not as bad as it was, I wonder if it might be flaring up again. I have to reduce to 40mg per day from next week, then a slow taper over a long time I guess. Some damage has been done to the optic nerve which is permanent but I'm so glad that I can still see. Worried though - what if the next drop in prednisolone does suddenly make me go blind?
The trouble is that my blood sugar levels are all over the place, I'm trying to cut down carbs a lot but am so tired all the time I can't do much, so I can feel the weight piling on anyway. I do need to reduce the steroids because of diabetes, and am not on insulin yet but guess I soon will be.
I'm sure I'm ok, just want to hear if it's ok just to let this go and cope on my own with it. They were absolutely wonderful to me at the eye hospital but after the biopsy it was Christmas and I now don't go back until the end of January, for a rheumy appointment in another hospital. I still feel that I want the eye people to be near me. Should I ask for another blood test run? I had 3 lots of blood tests, some were ok and some were bad but I guess that's just the nature of GCA, it seems to hop about your system like fleas.