I have GCA and PMR. I had thought that all I needed to worry about is Prednisone. I described to one of my doctors a small eye incident. My eye exam was good. But he diagnosed Amauroses fugax, from my description of the incident: Early morning; one eye; very short in duration; sort of looking through snow or the static on a TV, when not placed on a correct channel. I had not heard that symptom precisely described. I didn't worry too much about it at the time. I'm happy that the doctor is on it. But he ordered my carotid arteries looked at and maybe an echo cardiogram and other tests, I guess from a heart doctor and maybe a neurologist. (I was relaxed about the 6 months to see him again [described below]and wasn't paying really close attention.) He wants the tests NOW, and apparently can get them. (It's a renown eye hospital associated with a good general hospital.) I had wanted to wait until May--after my April vacation. This doctor (a neuro ophthalmologist) seems not to want to alarm people. He's very low key. He has fellows and residents and technicians (optometrists and oculists and people who run machines with lights, etc.) who see me first, and he directly says only minimal things. I have seen him often. He told me that I had not had an ischemia of an eye artery and that he probably didn't need to see me again for 6 months. (I have a rheumatologist.) Then he grilled me about eye symptoms - I guess to make sure before he let me wait longer to see him. (I had told the other MDs and professionals about the symptom in an earlier appointment.) So in response to the grilling I spoke directly to him of the symptom. He didn't explain in depth, and certainly down played the symptom. (He said: "I've never heard of that.") But bang, then the diagnosis was on the report. I'm happy he acted. But what is this? Does anyone know? I didn't even know about the diagnosis until I looked on a Hospital Health summary form which is available to me on line. And with regard to him being low key--maybe he's right. I'm now worried and sort of depressed. He wants the tests done before I go. He said: "You have 4 weeks before you go. Let's do it now." I tried to google the situation. It's apparently sometimes a symptom of GCA, but people without GCA can get it. Without GCA I guess that people worry about a stroke and ????emboli??? With GCA, I'm not sure. He doesn't see anything during the eye exam. Does anyone know anything about this? Sorry about the length of this. But I would really appreciate any help you can give me.
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