Had pmr for 8 years and then 3 GCA episodes in last 18 months. Had a very average Rheumi until last year when I saw a brilliant one but she went on maternity leave and I got allocated to a new one who just told me it couldn't be gca as no one has it 3 times!
I know the symptoms and know my body. Each time the symptoms have been classic, scalp tenderness, jaw ache, headache and the worrying double vision. How a Rheumi can just deny the existence and implications of these symptoms is beyond me.
I live very near Chertsey, could someone please advise the details of the consultant with a high reputation please.
Currently on holiday in Caribbean and a new outbreak with worst double vision so far. Gone to 75mg as not likely to be local resources that can sort it and will go to eye doctors on return.
This disease is not taken seriously by so many professionals. I feel for some of the older people who cannot do research and it becomes too late for them.