Advice on temporary increasing pred. dose please.
I have reduced from 15 mg to 2 mg partly for its own sake and partly so the rheumy could see me with the pred.masking symptoms. Before I started the slow reduction about February 2014 as since , Xmas I could never get below 8 mg. There still seems to be a question mark over the PMR dx. but I do have the, within, hours magic response to the pred.. Previously no raised ESR but whose to say what went on in the years before I got to the rheumy? My problem is that I have committed to leading a two-hour walk in March and April for different groups and a day (2 hr walk again) at Chatsworth in June for the walking group of which I am chair. Up to October last, I could manage the 2 /3hours walking in hilly Ilfracombe
and felt well apart from the early morning aches.without undue after-effects but even this is beginning to be taxing. I thought by now there would be some sort of management plan for my lower half which is the main area of involvement with night-time aching, weakness etc.and general flueyness. I also was dx with Parkinsons in 2009, age 69, symptoms , well controlled. There is a helpline connected to the rheumy dept.but last time I contacted them on a similar problem connected with suspected gout the nurse didn't listen to the question or even reply until a second phone call so I naturally got a silly answer along "do what the rheumy said" line ignoring the question The rheumy just recent;y prdered a range of bloods which are done and am due for a second mri scan in addition to the one my gp ordered eighteen months which showed up many things associated with pmr and possibly a biopsy in collaboration with my neuro (specialist talking together - whatever next!!)
I am booked to see the GP following rheumy's letter in about two weeks. She has according to the GP receptionist mentioned "over-active" thyroid but we've been down this road before and experience tells us over many years I just naturally go up and down from test to test.
So eventually (!!!)we get to the question, is it all right in general , I'm not saying advisable, to up pred.specifically to fulfil specific commitments. Walking/rambling has been a large part of my life hitherto and is v.g. for Parkinson's gait. and as things stand I can't do much in the way of holidays what with the cost of ins.at my age (add in osteopenia and B12 deficiency)and the current symptoms which are beginning to get me down..
I've attempted to post a picture of me in Neal two years ago when I actually had taken pred.before going (without telling the doctor or travel ins.)because the honeymoon free of the pmr (as I now call them)type symptoms had threated to come to en end just before going to Nepal in March 2012. I am not sorry grabbed the opportunity but I don't suppose I did myself much good
If anyone has got to the end of this ramble thanks. It has certainly clarified my thoughts.