I was told by a Consultant 3 years ago that I had PRM because of my symptoms and my ESR was very high. The steroids were not bringing the inflammation down so he put me on Azathioprine - my ESR is now down to 20 and has been for quite a while. I came down from 30mg prednisolone to 6mg but had difficulty along the way, the last being when I tried to come down from to 5.1/2 I got a bad flare up - could hardly walk with pain in groin and got up the stair crab like. Doctor put me up to 10mg and the relief was marvellous. Saw the Consultant a fortnight after - he was not pleased that the Doctor had put me up and noted my ESR was 20 (I had had it taken before seeing him) . He said that if the ESR and CPR was not up (I have never had that test taken) I could not have PMR. I replied that the pain does not respond to any pain killers only steroids and that I am in agony . He did not reply to that, only to say that I have to come down. I hate taking steroids and it really annoys me that they give the impression that you are not trying hard enough when you are sweating blood trying. Is there anyone that their ESR is normal (when it originally has been high) but can still be getting flare ups.
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