I've been slowly coming down the pred from 10 to 6 from last November to July. I tried 5 and three quarters for a fortnight but struggled hugely so went back to 6. A month later, still on 6, still had a lot of pain and exhausted by the afternoon. Visited doctor who put me back up to 9 and did a blood test. This is my third day on 9 and no difference. The really strange thing is that although my ESR has never been high, it does go up to 20 when things are really bad, but this time it hasn't..ESR is 6 and CPR 1. Can't understand it as I used to be able to tell what the results would be before I got them just by how I was feeling. Has anyone else experienced this?
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