hi everyone, hope you all had a lovely Christmas and wishing you all health and happiness for the new year.
was diagnosed with pmr 12 months ago. since then its been swings and roundabouts with my treatment. doctors always seem to want you to reduce prednisolone very quickly. after the first 6 months after starting on 20mg my course was complete.
I then moved home so different doctor and they put me onto 5mg pred,eventually reduced down to 2mg now up to 2.5mg, I have been referred back to rheumy on 20th January.
main reason for post;-
over the Christmas period my dad was admitted to hospital and is still in and my mum still lives at home. i used to live just down the road from them and have always been their for them and helped out as my dads been ill for about 30 years. i also cared for my grandma over her last 8 years of her life cause dad said he couldn't do it.
i was finished on ill health from work in 2009 for another problem, not pmr, i am now 57.
the thing is this time i have found it so difficult, my pain is worse, the fatigue is awful, got to the stage were ive ended up with sinusitis, throat and chest infection.
don't even know if im explaining very well, but i feel so guilty, angry with my body for being so weak. i don't know what to do, i can't let mum and dad down at 84 but i feel if i carry on as i am doing, this is going to happen.
is it normal with pmr to feel like this. just a normal day seems hard to get through but this has really shook me.
sorry for this, got my self in a bit of a state