I'm down to 9mg after starting at 60mg in January following diagnosis GCA and PMR. Was doing fine until a few weeks ago when I started to get the same pain in my neck and shoulder that I had before diagnosis. Also noticed I'm getting stiff again - legs and hips- after sitting at my pc for any length of time. I was due to reduced to 8mg this Wednesday but having seen my GP he's advised against it and to stick at 9mg or maybe even revert to 10mg. I'm disappointed as hate being on steroids but know it's saving my eyesight so have no choice and was looking forward to going down to 8mg. Going to get a blood test this Wednesday to see if inflammation markers have gone up. GP doesn't seem to think it's a flare but as I've never had one so far don't know what to look for. Can anyone advise?
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