It's a year since my PMR morphed into GCA overnight with scary visual symptoms as well as a tender scalp. 60mg of Pred sent me round the bend mentally and I was just horribly, horribly ill. In that first 9 months of exhaustion, sweats, hideous weight gain and general bonkerdom I could not see any light at the end of the tunnel. Well, it's nice to report that I am back in daylight again. I had a hip replacement last week because I'm finally down to 10mgs Pred and MTX. The exhaustion has gone. The sweats are better. Even 6 days post op I am walking without sticks (I know - I should take it slowly) and life is worth living again after a really tough year. I suppose I am saying hang on in there to all of us on high dose steroids - it does get better and this forum has been a great comfort and source of good info.
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