Lumpus

[steph1]

Does anyone know about Lumpus im not sure if ive spelt it right, my last blood test was showing lumpus I don't know where this has come from if anyone know about this I would be grateful for comments .

Steph

[Polywotsit PMRGCAuk team member]

Dear Steph

Do you mean lupus? You can find out about lupus from Lupus UK website and I think there might also be a lupus uk community on healthunlocked,

best wishes

Kate

[steph1 in reply to Polywotsit]

Yes i did mean lupus and thankyou katie do u know if its poss to have PMR aswell as lupus ? As ive been on steriods since last July for PMR

[Celtic PMRGCAuk volunteer in reply to steph1]

Hello Steph

I think the best person to ask is your GP, especially as you've been told that a blood test has revealed lupus. Although it is possible to suffer from more than one auto immune disease at the same time, perhaps the lupus diagnosis has thrown into question the original diagnosis of Polymyalgia. Some of the symptoms are the same (muscle and joint pain), and steroids treat both conditions. If I were you I would check this out with your GP. I wish you well.

[Bethy]

Yes you do mean Lupus. It is another inflammatory illness, and worth looking it up in Google.

[Annodomini]

Steph, I've known a few people with lupus which is an auto-immune condition and presents in a number of different ways. I think there is more than one kind of lupus. Since it showed up in your blood test, I'm surprised that your GP hasn't called you in to discuss the diagnosis and the treatment. Good luck, Anno.

[steph1]

Its the hospital that requested it and im seeing them on 4th June , im already on steroids for PMR

steph

[Dibs]

Hi Steph,

My Rheumy also says that my bloods have shown lupus but as I'm already on steroids and have been for the last 5 yrs for GCA/PMR that he wouldn't do anything further. He is saying that I will stay on pred at a maintenance dose for life, save for any flares.

I must admit its frustrating as he is not "doing" anything further re: lupus and it's not that I wish for another illness but I would like to talk through my options but all I get is that you are on the right medication so leave it at that.

I also have osteoarthritis in my feet and now it's in my hip and osteoporosis and disc degeneration in the spine, but the good news is from the last dexa scan the osteoporosis in the hip has halted.

I would be interested for your blog after you have seen the hosp on 4th June.

Best wishes

Deb