So after four weeks I am down to 40 mg Prednisone. Side effects I hate are horrible cramps in fingers, worried about driving too far so only short trips to shops, better going early in the day before I get sore! Napping in the afternoons but only for short periods as sleep at night has become problematic. Two days ago took a Kalms and a small mug of milky Horlicks before bed and actually slept or a full four hours and no nightmares. So repeated last night and again a better sleep, still reading and eating bananas at 4 am though.Taking one day at a time, I did a little gardening for about an hour a couple of days ago but soon became quite shakey and hot but it was good to get out on the one nice day we have had for a while. Pred reduction continues so 30 next week and then a blood test to see what Plasma Visc levels are doing.
Finding the questions/ blogs really useful though and it is reassuring to know I'm not alone in this. Still trying to get my head round the fact that getting back to work is probably a long way off for me.
I read an article about the super fruit Baobab powder so have started sprinkling a spoonful on my muesli, it was in the Penny Sale in H&B, it us supposed to boost energy levels and Work wonders. Can't do any harm and does not seem to interact with steroids according to interactions website...nothing ventured nothing gained.