Is there anyone else in the St. Albans area suffering with this awful sore, raw, groin pain that I have lived with for over 20 years?

[Sheilam]

I would be happy to set up a support group for others in the Stj. Albans, Hemel, Hatfield area. It is such an isolating condition that isn't understood, and one feels such a freak! Sheilam

[PPSN_JudyB Pelvic Pain Support Netwo]

Have you looked to see if there are others in your area ? there was someone who was interested in that part of the country who helped with a group in Northampton but I don't think it's still going.

Maybe there'll be some others in the area who will be willing to help

Good luck,

Judy

[Sheilam in reply to PPSN_JudyB]

Thanks very much for replying. However, Northampton is a bit distant from St. Albans, in Hertfordshire. Perhaps people don't want a support group, but if there were any they need to be reasonably near for easy contact. Best wishes, Sheilam

[jacquieb Volunteer]

Hi Sheilam

I live in the Hatfield area, look at my background, and contact me again with the sort of problems you are experiencing.

[Sheilam in reply to jacquieb]

Thank you Jacquieb.I.m sorry I don't know how to 'look into your background'! My incompetence with the internet I'm afraid. Perhaps you can look at my backgroun. I wasn't looking for problems; I just wondered whether if there were about half a dozen people in a reasonably compact area, they might like to meet up now and again to have company and understanding with folk with similar pain problems.

[Sheilam in reply to Sheilam]

The problem of constant pain and the isoltion one feels at having a condition that's difficult to describe and difficult to understand and difficult to live with! A few people with similar circumstances might like to get in touch or meet occasionally to have coffee and a chaat and 'buck each other up'. Sheilam

[jacquieb Volunteer]

Hi

I think its a good idea, see if any more respond, if not we could meet up.

[jacquieb Volunteer]

Hi

Do you live or work in St Albans?

I am interested to know what your symptoms are,do you suffer from pudendal neuralgia or other pelvic problems> Cant find you in the Directory. You can see me listed there too.

I think we are the only two in the same area at the moment but its a start.

I hate this condition, sometimes it frightens me as my symptoms are getting worse not better.

j