Understanding Pain: short video: what do you think ?

[PPSN_JudyB]

It would be interesting to hear what you think of this short video from Australia

youtube.com/watch?v=4b8oB75...(Not working as expected?)

[helenlegs11 Volunteer]

Very good video Judy, I would encourage everyone to watch it as this is the way chronic pain sufferers are to be treated (psychologically and medically) from now on.

In other words you can't be in pain after 3-6 months. That's wonderful, if it were true.

I am all for cognitive therapies, and pain acceptance. The brain IS complex and I have taken a great interest in the biophysiosocial aspects of pain and newer therapies and medical pain concepts. THIS really is going to be the way forward, I think so everyone needs to be in the know.

At least it didn't come right out and say you are a big fat pizza eating, beer drinking slob, who OK has had a shi* life, but only because you 'catastrophize' and just loved to wallow in a 'poor me' existence on benefits, virtually plugged into the TV on your lazy boy sofa (cos the chair is too small now) PHEW!

So considering they didn't say this, I thought it was well presented

There are definitely benefits from any 'brain training' for everyone in chronic pain. I know that I have a pain 'volume' button that I can turn down (to a point) I also know that I don't fit the profile of this type of chronic pain sufferer (although at over 50 and have had a back problem in the past (resolved, however) I do tick a couple of boxes

I would really like to know how they view entrapped nerves?? I have probably have 4 of them all at piriformis level due to a fall 4 and 1/2 yrs ago. Yes I am better from that fall, improved anyway as I'm not seized up in bed with one leg hanging over the side, looking like I'm getting of a horse, but stuck! I can walk to the bathroom now. Hooray!! but I still have trapped nerves that send shooting pains etc, my p muscle is V painful still to touch and if I do get an injection (had lovely botox, which did help) I almost levitate as soon as the needle hits my p muscle it hurts that much (and I am hard! :))

I really would like some feedback on people who do have actual physical injuries that ok have heeled but have heeled in such a way that scar tissue has entrapped some nerves that still cause problems. Yes I can turn the volume down most of the time (and do) but there is no denying that I have major limitations even though I can and will tough it out. My husband is the one who then suffers as I grab his arm and squeeze when the electric shock shoots through me time after time as I have done too much that day.

I know surgery is my only answer but I haven't even had the opportunity to pursue that option (Dr Greenslade has recommended I go to France but the PCT are having none of it) and I will take every option to gain more pain acceptance therapies, I think it is the very least they can do for me actually

What's your take on it?

Take care

Helen

[PPSN_JudyB Pelvic Pain Support Netwo]

Helen,

Love your comments. I agree with what you say about the video: it's quite basic but not condescending. Your question about trapped nerves echoes my thoughts too. There has been little attention to this aspect as you know. It's starting to be mentioned at medical meetings albeit usually fleetingly depending on who is speaking. I'm not sure the audiences appreciate the relevance of it which is why I'm passionate about patient participation in health professional education !