Why do I get a 'honeymoon period' of a few days to a week, then the pain returns with a vengeance?

[ncoplin]

[PPSN_JudyB Pelvic Pain Support Netwo]

This seems to very common. Do you keep a diary of what you do and when it starts to see if you can identify any triggering factor ?

Oh I am sooo envious of people who get a break from their pain - I can't remember what it's like to be without pain during the day.

[jacquieb Volunteer]

There has to be a trigger as Judy says, although sometimes its difficult to remember what it was. Its all part of its complexity. I don't know what's worse having pain free days and back with vengeance or having it all the time with certain days better than others. I think I would like the pain free time to give the brain a break and feel "normal" for a bit.

[helenlegs11 Volunteer]

I have tried to re-assimilate my 'normal', it works up to a point and then if there is a better moment or 6 it turns into an added bonus

You can only try to fool yourself so far.

It is really difficult actually figuring out all 'triggers', although I know quite a few of my major ones now. I have found that simply 'doing stuff' is often the 'trigger' and I know I'm going to keep on 'doing stuff', so will just have to put up with it, because NOT 'doing stuff' just makes me far too introspective and then properly miserable.

The problem with pain is that can register so deeply it seeps into every aspect of existence, where as pain free moments are comfortably wonderful but 'expected' (in a "why me" way) which lulls one into a false sense of pain free security so when it reoccur's it's difficult to dodge the 'punch'.

Maybe it's because increases in pain aren't so noticeable as the onset of it ? ?

Today was a good day however, I had tons of moments when I recognised ME!

Aren't those days great!

All to do with someone else's happy story that I had a very slight hand in.Keeping this feeling until tomorrow at least.

[ncoplin in reply to helenlegs11]

So happy for your good day. I have been looking for a therapist (psychologist) who specializes in chronic pain . I know when I am doing something fun or with someone to take my mind off of it , it is better!

Glad you had a pain free day. Aren't they wonderful !!

[helenlegs11 Volunteer]

Another forum friend recommends this book 'Coping Successfully with Pain' (Overcoming common problems)

by Neville Shone. She swears by it, haven't read it personally.

[ncoplin in reply to helenlegs11]

I have a couple of books. I start to read them and end up teary eyed. Guess I just cant accept my condition.

[helenlegs11 Volunteer]

I haven't even bothered started reading any, it just makes it all more real doesn't it.. Well we don't have to go there

[jacquieb Volunteer]

I suggest we don't read them. I agree when you have other "nice" things to take our mind off the pain is fades in the background.

I wish there was a pill to make me "happy clappy" all the time, maybe than the pain would go and give up. Its like a demon and feel that I am battling against it at all times, but try and not give into it as its won....I have a better name for it but won't mention it outload.

[PPSN_MariaZ Volunteer]

Although I don't have pain-free days, I have hours when pain is not so severe all the time so I can function and I can even do fun-things with friends. But then, pain increases afterwards. The worst bit for me is to adjust my feelings and emotions to such a roller-coaster life. As you said, it feels like "pain returns with a vengeance" Also my pain is so unpredictable! I wish I knew how I am going to feel tomorrow... or later today!

I don't really know how I cope. I think it helps to feel the love of the people around me and, when possible, to be involved in something meaningful or pleasant.

xxxMaria

[Hidden]

I have a website about my tips, treatments and coping strategies for Pudendal Neuralgia. I've come a long way since being diagnosed at the 4.5 year mark (almost at 6 year mark now) but I found my trigger pealing those onion layers. I initially fell to concrete after a fitball I was sitting on burst. It's no surprise now to find my trigger is the rectal branch of the pudendal nerve. The horrid heat starts there. I've had nerve blocks now and they help a great deal but best of all SOAK IN A COLD BOWL... yep, sit in it! or run cold water over your painful area. for me it felt like it reduced the inflamation. i managed flareups this way and believe the more i did it the better i got as i didn't allow that branch to 'have its fit'. read my story anyway.... i've had 17,000 visits from people seeking relief from this horrid pain issue.

Good luck

pudendalnerve.com.au