Hi, just been for a probe ultra sound after bleeding for a week( post menstral) she told me I can’t have pelvic congestion syndrome, as you

[Aprilbaby24]

don’t get it when post menstrual!!! So the pain clinic I’m under is wrong!!!! I’m going private in Oct thanks to family, and I’m praying they will be more knowledgable 🙄

[sarahalice]

Hi. I'm pretty sure they can only rule out pcs with the keyhole procedure, where they have a Good look around (sorry forgot what its called). I'm pretty sure I've got PCS and have been told that I need this procedure to find out. However they won't do it as I've got lupus.I've had the internal ultrasound, just to rule out it being anything else.

I would query this with a specialist.

[Aprilbaby24 in reply to sarahalice]

Thanks for the message, I’m just confused about all the different diagnosis’s there are!!! My family are paying for a specialist who has experience in chronic pelvic pain, so let’s wait and see 🤞🏼

[sarahalice in reply to Aprilbaby24]

Hope it all goes well 🙏

[Konagirl60]

May I please ask what your symptoms are? Can you the describe the pain? Do certain body positions or activities make it worse? Thank you.

[Aprilbaby24 in reply to Konagirl60]

Hi, my symptoms are constant low down pain, feels like my insides are going to fall out when I pee!! Walking, sitting, lifting, pulling and low down cleaning all make the pain much much worse. I take Oxybutnin and Duluxetine and codeine, sometimes a bath helps or lying on my side. I’m putting a complaint in against the consultant who probed me yesterday ! She was heavy handed and hurt like hell! She had no empathy or signs of kindness! Once again I’m left disappointed with the experts 🥺

[kellerfly]

Hi — I have been diagnosed with pelvic congestion syndrome — and that was 3 years after a hysterectomy. It has to do with your iliac veins being compressed, and nothing to do with your uterus.

Just letting you know that I did have a procedure to try to help with this almost 2 years ago, and nothing changed with my pain levels. I do still have other issues. It could be different for you.

Hope this helps.

[Aprilbaby24 in reply to kellerfly]

thanks, I’m in so much pain after the probe that my gp wants me to have a further investigation before she’ll prescribe stronger painkillers!!!!!