fissures

[razzle51]

I have pelvic floor dysfunction burning pain vaginal and in perineal area. I have terrible pain while sitting that is different than what I have struggled with for years. I have gone to a rectal surgeon and he kept talking about itching, I told him I do not have itching,gave me some cream but because of my pelvic dysfunction it burns too much to use. He had me stand up and spread my cheeks but said I have minor redness. When I look in the mirror after bowel movement tissue comes out that is white looking, tissue, two drs have said that I do not have hemorrhoids. I do not know where to go or who to see now. I can not travel with my husband or enjoy going out with him because of this. Please give any ideas you have for me.

[Jen82]

Have you been seen by gynaecology? Sounds like vulvodynia for the burning vulva and vagina pain. Then bowel and bladder issues associated.

[BlueLagoon007]

Has anyone suggested it may be pudendal neuralgia? Go to a gynaecologist but one that knows about pudendal neuralgia. I am not saying it is that but it would be worth getting checked out for it.

All the best.

[kellerfly in reply to BlueLagoon007]

I agree with pudendal issues. It usually pairs with pelvic issues. It’s something that I’m quite familiar with and have been struggling with both pelvic and sitting issues for awhile now. I am seeing pelvic physical therapists to try to remedy this issue. It’s not easy at all.

[ColonLess]

Possibly lichen schleroses?

[razzle51 in reply to ColonLess]

I was just diagnosed that I have it.

[Skye22]

Have a look at levator ani syndrome similar symptoms.

[anna1234567]

I see some very good suggestions, other option is symptomatic Tarlov cyst at probably s2/s3, although most doctors will still stick to their opinion that they never cause issues. My vaginal pains were caused by a large one. I had surgery, but I now have rectal issues.

[Lumenia]

I get burning and the feeling of needles stabbing into my perineum and vulva. The peeling you're describing sounds similar to what I deal with on my perineum during one of these flare ups. I went to GYN and they are doing a biopsy. It might be a good idea to go to GYN and see if they would sample the tissue.

[Jmo9k]

Hi Razzel51,So sorry to hear of your pain and associated issues. I went from urologist to Gastroenterologist having various procedures over a period of 18 months. The medication made me very ill to the point I couldn't function but through this chat list I heard about pudental neuralgia and seeing a pain management specialist, I saw Dr Greenslade in Bristol UK who quickly diagnosed me with a trapped nerve condition called ACNES. Such a relief to know what the problem was. Also on this chat forum I heard about using a donut cushion and a book called Heal Pelvic Pain by Amy Stein. These have transformed my life. I can now travel in a car, train and even long haul flights with very little discomfort. Before the pain would have been horrible until I walked, ran or lay down. It's so debilitating and also stressful when you dont know what the problem is or how to help not hinder.

I wish you all the best and hope you can get the right help soon. But certainly try the donut cushion in the short term. It could be a cheap way to take the pressure off the pelvis and relieve the pain. I bought a nice bag for mine so no one bats an eye when I carry it around and sit in it. Works a treat.

Jules

[razzle51]

Thank you so much for your comments, will definitely get another opinion

[JpRussell]

I have the same thing. Been ongoing for 6yrs. A year ago I was told that I had Pudendal nerve damage. I'm now waiting for a nerve block