Has anyone dealt with pelvic pain on their left side that just will not go away? It gets worse with sitting, standing, bending, overdoing... I have had an ultrasound and CT — neither have shown anything; though the US was blocked on the left side. My OBGYN requested an MRI, but insurance denied it b/c she is out of network for such things. My urologist is in network, but she is denying me the MRI altogether. Saying it is unnecessary since the other tests are showing nothing. Also telling me she won’t do my Botox anymore since this pain has gotten worse instead of better over the last 6 months. Hello? I need more help, not less? Fibro + a dysfunctional pelvic floor is a recipe for disaster. If anyone has experienced this and has advice — I’d appreciate it.
*I did have a hysterectomy 2 yrs ago. My primary doc wonders if it could be scar tissue? Could it really be that simple? 🤷🏻♀️
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kellerfly
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I have exactly the same pain but on my right side. It gets worse with the more active i am. It can get so bad that i can't even bend to tie my shoe laces 😖My scan was clear too, but it's rare scans can pick up endo or scar tissue.
I am on the waiting list for an lapospapy.
I also have pelvic floor dysfunction too. Such a battle isn't it 🙈 x
Hi there I feel.your pain I too had horrific left side low pelvic pain had a fit test poo test it came bk positive so I was worried sick it was sinister had a colonscopy amd nothing was found I changed my diet more fibre to ensure I kept my bowels open and hey presto it just went pain went after 2 months of excruciating pain I also think that as soon as u know its nothing it goes my gp said jeanette sometimes we get pain then it goes hope this kind of helps xx
Hi Kellerfly. Just a thought, but have you been examined for IBS. I have had this condition for many years. When I first experienced the pain it was excruciating & I felt as though I couldn't bear it. Now I know which foods & conditions set it off, I am able to manage it better. It's almost a year since I last had a flare up. Stress is the worst possible thing for IBS, also too much spicy food, wheat or hi bran cereal doesn't help with the pain.Try an elimination diet, write down everything you eat, this way you can identify which foods disagree with you & cause the pain.
I have IC — so my diet is already very limited and I watch everything I eat like a hawk, so I’m in tune if something flares me up because of food already. If it is IBS (no, I haven’t been tested) and I’m eating something that flares me up because of something related to IBS? Yuck. But, I do listen to my body when it comes to food and cause pain. The IC diet SUCKS.
I have left side pelvic pain, no cause found. It is mostly by my sitz bone and into the left side of my lady bits. I have a hypertonic pelvis, issues with tight hamstring, hip and IC. Chiropractor has helped a lot with hip issues and is working on my hamstrings. I also have found that fascia release has really been helping with the tightness. Hope you find some relief.
you sound like me! I had an "abnormal" pelvic xray and I get a pelvic MRI this weekend... I am almost scared about what they will say... My sacrum MRI shows I have tendinosis in my hamstrings and glutes and a tight piriformis muscle... Who did your fascia release?
Have you tried a specialist physiotherapist? They can often help with scar tissue and maybe with a diagnosis. In any case they will listen to you and are used to treating people whose MRI or other tests show nothing.
I had pain and l had h pylori and it was treated with double courses of antibiotics. I also had a colonoscopy which was like a factory reset. They thought that a could have had diverticulitis but thank goodness all was well. Having had the double courses of antibiotics and the colonoscopy l have been well.
Please go see a pelvic physical therapist! I had this 3 year ago; went to 8 different specialists of all types, and all tests were clear so they washed their hands of it. I researched it, went to a pelvic therapist and found out my fascia was tied up with my 30 yr old c-section scar tissue. The treatment was intense (kneading skin like it was taffy, bell cups, etc) but it worked!!! I just started getting the same feeling again, ran some of the same tests, all clear (CT, Ultrasounds, Blood work) and stopped when I realized it felt the same as before. Just went yesterday to a pelvic therapist and sure enough, fascia was tied up with my tissue. Cause this time was different though-overweight so my “roll” below the abdomen was putting pressure on my lower pelvic area; and stress-because apparently 40% of people carry their stress on their pelvis- AND, all the sitting I’ve been doing while working from home during the pandemic! Please check it out-it can’t hurt but it certainly may help! Best of luck!
I have worked with a few different pelvic and spinal PTs. Some helped. Some did not. I am on a waiting list for a new one now. I have no doubt I have some issues that a PT could help me with.
I was seeing a pelvic PT for 1 1/2 years, she was helping me, or so I thought. I ended up in hospital with a kidney stone. When I went back she said I was better than she thought I'd be and dismissed me saying I couldn't go any farther??
Have felt all that though pretty bilateral. Has anyone recommended you get tested for pelvic vein varicosities? I don't believe they show up on a normal CT or MRI. Regular ultrasound won't diagnose either. Need a pelvic floor ultrasound with special machine most places don't have, and potentially a venogram by an interventional radiologist. And have you heard of pudendal neuralgia if it makes sense? I've been diagnosed with both, as well as the fibromyalgia and fascia issues all probably due to late stage Lyme. First had venogram and found veins not functioning having them embolized. Minimal relief with that alone. But I actually just traveled to my pelvic pain doc on Arizona who has helped tremendously (as has fascia work) but still looking for another level of relief. Originally he did pudendal nerve release surgery and now we are doing Botox. And checking veins lower perineal veins. We could chat more if you feel like any of this resonates. Fyi I struggled like that for years and much of it is improved. Through a combo of these things.
Thank you for this! I do have pudendal neuralgia — but I have not heard about the pelvic vein varicosities. Thank you for that heads up. Where in Arizona was the dr located? I may DM you for more info.
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