Best panty or panty liners for vulvodynia and pudendal neuralgia

[swt16s]

Looking for recommendations on panties that would be comfortable for women with pudendal neuralgia (PN) and vulvodynia. I have had a hysterectomy, so post-surgical menopause. I have tried all types of disposable panty liners, mainly brands that use organic, unbleached cotton. But they are extremely irritating. Some sort of liner or absorbent underwear is a must due to having to rely on vaginal suppositories for pain relief. I have tried without a panty liner but that created a discharge that stained my pants and was a challenge to get out in the wash

I have been researching washable panty liners, but there seem to be lots of complaints about them not staying in place. On my search, I stumbled upon period panties that are absorbent for wear either alone or in combination with tampons, menstrual cups, etc. These intrigued me, but I searched for what felt like forever just to find panties that didn’t irritate me, usually the bands around the thigh/groin area. I currently wear a boy short style that are seamless and bought a size up for a looser fit. I welcome any feedback on the topic that may help me learn what to avoid and what may be possible options. There must be some type of reasonable return policy as I know there’s no one size fits all and want the opportunity to try something out but return if it isn’t the right fit. What I’ve come across so far seems to be a bit pricy. I’m willing to spend the money for some much needed relief but do not want a useless expensive pile of panties to pile up beside my cushion graveyard. Thanks in advance!

[Janebee]

Hi I seen a post for pelvic pain pants the only thing I think they were from America, I think if you google it you will get them sorry I can’t be of anymore help

[swt16s in reply to Janebee]

Thanks. I’ll google them. I’m in the US.

[Ailiesonkerr]

Hi I keep buying Sloggi pants in the UK. The have no rough rims and are seamless and I buy one size or sometimes two sizes up for comfort. I feel for you also having to use a panty liner as I cannot stand anything diggin in in groin area... even exercise leggings drive me mad sometimes, but sloggi pants are good... make sure it is the no vpl kind. Wish you best of luck finding something comfortable x

[swt16s in reply to Ailiesonkerr]

Thank you. Will check these out and see if they are available in the US. I have to wear loose fitting pants, usually with some sort of stretch to them. I hardly find anything stylish that looks good on. At home I live in loose pajama shorts with sweat pants over them if it’s cold. Occasionally I will wear leggings but I usually pay for it later, especially if I have to sit for any length of time. There is one particular style of pants I have been wearing for work for many years and the store has stopped making them. I have been everywhere and not finding anything comparable. So incredibly frustrating.

[Carlettejaque]

Hi, glad you wrote in. I suffered Vulvodynia for 2yrs. Nothing helped and internal creams etc made it worse. Then I read that acupuncture could help. I found an absolutely brilliant lady who combines western with eastern Cupuncture. It only took 5 sessions and I was cured. Absolute relief! The acupuncturist name is Valerie Young and she's in Bognor Regis. So, I recommend you try it, perhaps you can find someone in your area. I think the reason she was so successful at treatment us the fact she studied for years and dies do eastern and western combination. Good luck

[swt16s in reply to Carlettejaque]

Thanks so much for your reply!!! I will definitely check into this. I’m currently working with a massage therapist who is Chinese and trained in Traditional Chinese Medicine (TCM). She is doing cupping on me, which she explained as similar to acupuncture but differs in the fact that she applies silicone suction cups filled with herbal tinctures and can apply infinite amounts of cups, where acupuncture is limited in the amount of needles that can be applied and usually prescribes herbal medicines orally. The cupping opens up your pores and allows the tinctures to be absorbed. I’ve had 2 of 10 sessions so far. Not huge results yet but praying it works.

[Carlettejaque in reply to swt16s]

I don't think you'll find cupping helpful for this. It's not a matter of toxins. You don't need a lot if needles. My acupuncturist puts 4 in a line from the pubic bone to the belly button and ones in my ankles and lower shins. Vulvodynia is definitely to do with the nerves in the body and as such acupuncture seems to disrupt and reset those nerves. The Eastern approach is good but when mixed with Western it seems to work better. I cannot say how very much my partner and myself are thankful of Valerie. I feel very lucky to have found her. She charges £38 per hourly session. That's if you could ever get down here.

[Ailiesonkerr in reply to Carlettejaque]

Hi I read your post with interest I have been suffering for nearly 3 years with what I thought was told was Vulvodynia and then told pudenal nerve entrapment. It is the strangest thing and really causes me the greatest pain on sitting and I sit down all day at work. Initially started with sever burning/irritation in my vulva and then now mostly excruciating burning/ raw feeling on my left buttock and top of my thigh. Bought bigger underwear, lightweight material like 3 sizes bigger to stop what I thought was causing irritation, cannot stand tight legging now or tight jeans. I was finally referred to a pain management specialist who diagnosed pudenal nerve entrapment, I was unsure not convinced it could be this but was to have a pudenal nerve block injection but chickened out of this as had heard mixed reactions on this. Dr put me on amytriptylline which helped in beginning but not helping now, that is why I was interested in your acupuncture has it really eased all your symptoms? Can I ask where do they apply the needles? Or any other pointers you can give me that helped you?

[Carlettejaque in reply to Ailiesonkerr]

I had Vulvodynia for 2yrs. The usual symptoms, burning and severe stinging every time I passed urine. I tried everything. The doctor put me on Amytriptoline but it gave me stomach aches and the runs. I heard about the acupuncture and gave it a go. After 5 sessions I was completely free of it. I had to go back a couple of times as a kind of top up if I thought the symptoms were coming back.

The lady I see puts 4 needles in s line from the pubic bone to the belly button. 2 on the ankles (Inside and outer side of the ankles) and I think.1 or 2vin the shins. It is totally painless but you should feel when it gets in the right nerve. Personally I think its the only real cure. But, I never use soap or shower or bath soaps on those delicate parts, just hot water. Shower, don't bath. Soap in the water can irritate.

[Ailiesonkerr in reply to Carlettejaque]

Thank you so much for your reply x

[Skye22]

My specialist physio gave me samples of different pads to find out what suited me best. I get ID light pads on the NHS (free), products comes in a variety of sizes and I find them non irritating. Hope you find a product that is good for you.

[Konagirl60]

I rarely left my home over a nine year period. I lived in pyjamas. I couldn’t afford pant liners. I used toilet paper stuck up my rectum. It saved me a fortune. I also used capsicum pain patches throughout the day and night which absorbed leaking stool. Zinc had stopped my incontinence with stool as had my decompression surgery. Yoga pants were and still are best for me.

[swt16s in reply to Konagirl60]

Happy to hear you got some relief from decompression surgery. Doctor doesn’t think my nerve is compressed but inflamed from chronically tight pelvic floor. Also have vulvodynia. Toilet paper would also be very irritating for me. And unfortunately I work full-time so pjs/sweats/yoga pants not an option for times when I need to be at work or other social functions.

[trishj46 in reply to Konagirl60]

HI How did you use zinc to stop incontinence of stool?

I have soft stool that lays in lower bowel and have to keep flushing out---

if I did not I would be incontinent! Thanks very much for input!

Hugs!

[Konagirl60 in reply to trishj46]

Zinc firms stools and prevents diarrhea. A wise doctor I recently met advised me of it use.

[Konagirl60]

It would have been even more relief had I been taken seriously.

[trishj46 in reply to Konagirl60]

I agree with that too!!!! Take care!!!!!