Laproscopy WWas normal??? Now what....

[PainfulMe]

I'm not sure where to go from here.... I had waited for the surgery for over 6 months, and now I'm back at square one... My specialist actually accused me of being addicted to the pain killers... Feeling really low, and not sure where to go from here.

[Hidden]

I'm sorry you've found yourself with a doctor with no empathy. Seems to be a common theme with a lot of people. I went through it too and there were days I didn't think I could go on because I was in so much pain and so despondent from doctors not taking me seriously. I don't know how, but I did keep going until I found a doctor who said the most helpful thing in the world... "I don't know what is wrong with you, but I BELIEVE YOU." Turns out, 100 laproscopies and/or scans, tests wouldn't have helped me. My diagnosis came after a pathology report when I had my hysterectomy. I had adenomyosis which can only be found after uterus is removed. I now deal with pelvic floor dysfunction and pudendal nerve issues but that's another story... A long one. My point... I know how you feel. Please, please don't give up and don't let this doctor take away your fight or your dignity. Keep going until you find the doctor who does understand.

[Pepper1977]

Could be a nerve. I had never issues before my hysterectomy, Dr said I had adenomyosis  but I didn't so I lost my healthy uterus for nothing. I would first check with a psychiatrist, it could also come from your back but they also specialize I'm nerves. I was I'm worse pain after the hysterectomy, I developed pelvic floor dysfunction which caused the pudendal nerve to be irritated and my bladder. Unfortunately when it comes to the pelvis there are so many variables, but starting tolearn

is the best way to be an advocate for your healthcare. Join the Pudendal Hope group through Facebook, its a closed group but you'll learn a ton about nerves, muscles etc.

[mdonohue169]

I am going to be 71 soon have had all the treatments - lasic surgery for scar tissue bought me a couple of years. I've been on and off pain meds and hate them - never got addicted. I am so sick of doctors not understanding that this pain is BIG pain bad as having a baby sometimes worse. Everyone is screaming that opoids will lead to heroin etc. overdoses on and on and trying to foist some idiot non working anti-depressants on us. My primary doctor thankfully gives me a script for oxycodene which I take sparingly (usually 1/2 pill at a time) which I use to get over the worst of days. I've heard it all. If you are over 50 you are not going to get addicted to pills and the majority of patients use if FOR PAIN and grit their teeth through the nasty feeling and kickback sensations users get. I worked in hospitals when in my early 20's and saw patients go through serious injury and operations and take opoids for the time it took them to get well and then kick the habit easily. I had a serious car accident at that time have had major dental infections and surgeries and had to take oxycodene for short periods of time. At one point because of the agonizing pudendal pain which was taking my ability to walk I was hospitalized for 5 days and underwent tons of tests . They put me on Methodone, Lyrica, percosets, anti-depressants, non-opoid patches, and some other stuff (I still have the 8 scripts they sent me out of the hospital with non-filled). I was high as a kite which was fine for me because I hated being there and sleeping through a week in the hospital seemed not a bad idea. Still if I had a CAT scan where I had to straighten out my legs and the scar on my belly was pulled I would weep in pain. They found no reason for this amount of pain sent me out with the above named drugs and a note that said "return to normal activities." I was furious but the rest had done me some good. My daughter said, "Mommy let's stop at the drugstore and get your scripts filled before I take you home." I told her, "Are you OUT OF YOUR MIND?! I'M DOPED UP TO MY EYEBALLS!!! i CAN HARDLY WALK STRAIGHT!!! What I need to do is stay at your house for a few days while I withdraw from these drugs and then I'll try to figure out what to do."

And that's what I did - stayed for three days at her house while I moaned writhed around like a character in The Man With the Golden Arm, alternating sweating with freezing chills. When I got the stupid drugs out of me I went home to face life with Naproxen, Aspirin and rest. Epidurals work briefly - prednisone works and I try to take it in small amounts. I have had to accept that I will never be as I was, never be able to walk down to the store or even stand at a counter without serious pain. If I'm careful - have found swimming to be the best help for overall growing nerve pain I can be somewhat independent. But there are days that I can not walk a few steps unless I take a small amount of pain killer. I am sick and tired of doctors not understanding that they cannot cure you and blaming you if you ask for moderate amounts of pain killer. I remember an art history teacher showing us a film about Freda Khola who was horribly maimed in a car accident and depended on drugs in her last years. "How unfortunate," this moron woman told our class, "that she became addicted to drugs in her later years." I, who had endured many times of extreme physical pain was furious. What the woman was addicted to was - NOT PILLS - BUT SOME BLESSED MOMENTS OF PAIN RELIEF. My advice in these cases is to stand your ground. Your doctor works for YOU - you do not work for him. He is there to help you manage your health not give you lectures. Truthfully I resent the majority of doctors I have seen all my life who have taken my hard earned money, given me advise as if from the mouth of god and basically humiliated me at a time when my physical condition was a torture of its own.

[PainfulMe]

I am currently both astonished and appauled... My specialist outright LIED TO ME! I met with my family doctor yesterday, the first time since the surgery... And he told me that they DID, IN FACT, find and remove endometreosis.... He didn't believe that the one growth they removed could be the total cause of all the pain and is exploring other options...

But why the !@$$%&! would the surgeon LIE and tell me they found nothing???!?!?!? Just - WOW!

Just went for a whack of bloodwork and such - My doctor is looking for other causes that may be linked to my celiac, and he wants a colonoscopy to be set up and happening soon.

But he also mentioned pulling me off my pain killers, and I'm afraid of being left hung out to dry without them...

**Floored by the medical community.