PCD

[martin67]

I Hi i’m martin

I was born in 1967 in Exeter old hospital ( Dean Clark House, Royal Devon Hospital ) which was in southernhay East in the town centre and then in 1974 they moved to the purpose built hospital which became Royal Devon Hospital ( Wonford ).

Back in 1967 the Doctors & Specialist Doctors did not know anything about Kartagener’s Syndrome with Situs Inversus Totalis - Dextrocardia ( PCD ) with all the rest of the problems and illness which go’s with it .

so R,D+E Hospital ( Wonford ) is one of the best hospitals to go to for this illness

You must keep on to them and if your not happy you can ask for a second opinion and they will give you one ( I had to do that and they found out what it was after 23 years ) now i’m 52 years old .

I Live in newton abbot now but I still travel to R,D+E Hospital for my Appointments

I have Kartagener’s Syndrome with Situs Inversus Totalis - Dextrocardia ( PCD ) with all the rest of the problems and illness which go’s with it .

You might be able to claim d.l.a for the little one because of the extra things you might have to buy and keep Travelling to hospital

If you a chat my email address is

martin,[e-mail]

I hope you find this useful

From Martin

[Brora71]

Hi Martin - thanks for sharing your experience.