How many people Has got all
It’s ok to find out how people there is with Kartagener’s Syndrome ( PCD ) but how many people are there with Kartagener’s Syndrome ( PCD ) with Dextrocardia with Situs Inversus Totalis
Up to 50% of patients with PCD have dextrocardia (heart on the right side) and situs inversus (internal organs on opposite side to normal). A small percentage of the PCD population have organ placement or development that's neither typical nor totally reversed.
You can find more information on the PCD Family Support Group UK website
That’s not the question i was asking
The question I was asking was how
many people on here pcd support
group has got the lot
This is the forum for the PCD Family Support Group (UK) and the link, I posted above, is our website. The support group has been going for around 28 years, long before we had a website and forum. People dip in and out of the group, the website, Facebook page and this forum as and when it suits them, so we don't have a specific number of people in the group. We know of many PCD people with situs inversus, this includes dextracardia and equally those who don't have SI. They don't tend to use the term Kartagener's syndrome so much these days, it is covered under the name of PCD.
I hope that helps and that you are keeping well.
Hi Martin67, having dextrocardia with situs inversus & PCD is the true definition of having Kartagener. If you only have the PCD, then you don’t have Kartagener
I have Kartagener's Syndrome with dextrocardia and situs inversus.
Kartagener's Syndrome is called Primary ciliary dyskinesia (PCD) type 3.
Kartagener' Syndrome is a combination of PCD and Situs Inversus....
Were you able to have children?
No cannot have any children at all
My husband is 41 and has Kartagener and has no children due to zero motility. We are currently going through our second round of IVF.
What type of physician diagnosed you?
really know many people who have children with PCD so my question is about the management of PCD. My children...
Hi all Just joined the site. I'm trying to locate other PCD / Kartagener sufferers who are in their
with babies that have PCD. Olivia is 6 months old We found out she has situs inversus after her sats were...