PBC and AIH - other autoimmune issues.

[Frostingfun]

Does anyone here have issues with tremors and sudden body jerks from head to toe? I have gotten so bad that I have pending MRI and EEG scheduled. I'm very worried.

[danaLL]

I am so sorry I have never experienced that. Wishing you the best of luck and hoping for the best outcome and that you get this figured out!

[Snapoutofit]

I also am having body jerks, which I associate with fatigue. It will be interesting to see if anyone else is experiencing this problem. I thought that it might relate to narcolepsy. My primary doctor told me to not be concerned as long as it only happens when I'm sleepy.

[Frostingfun in reply to Snapoutofit]

I'm just so afraid that inflammation is attacking everything in me. Already battling heavy fatigue and most medicines to help with calming shaking, jerking, whatever... Causes even more fatigue. Having a liver disease complicates so much when it comes to finding medicines that's are safe.

[Snapoutofit in reply to Frostingfun]

I don't know what medicines they are giving you for the jerking. Like I said, my doctor is not concerned as long as they are associated with sleepiness. I have what one of my specialists' calls overlap syndrome. I have celiac (likely inherited from my father) and limited scleroderma (formerly called CREST). In addition, I have severe spinal stenosis and arthritis. I'm trying to move as much as possible. I wore myself out yesterday with 2700 steps and fell asleep for about an hour at 5 pm. As you can see, I'm not a young woman with this stuff.