i just wanted to say that since I found this site I have never felt so part of something. After my sister died, (who also had pbc) I had no one to talk to or put my mind at rest. Although we suffered some different symptoms we both suffered badly from fatigue and used to have a laugh about who went to bed earliest. I now find that on reading this site most of the symptoms I suffer from are not in my head and I take comfort in reading tried and tested solutions to some of them. I know we are not doctors but the support I get from the foundation and on 'talking' on this site is worth its weight in gold. In fact there is not a lot my doctors knew until I passed on to them the leaflets I got from the foundation so hopefully there will be some understanding from them. It appears I am the only patient in the practice to suffer from pbc. So once again I would like to say to you all a very big thank you :-))
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