Frequent weeing

[Perkywerky76]

I was diagnosed 18 months ago and various problems which are linked and am borderline having cirohsis - I have just started urinating very frequently. I am worried now I have diabetes !! Does anyone else suffer with both and what was the symptoms first or does anyone else just wee loads??

[nannan]

Are you type 1 or type 2 I have had type 1 diabetes for the last 40 years and now have PBC I understand that the 2 arn't necessarily linked but if you have diabetes and your blood sugar is high you will def wee loads.

[Nissa]

I urinate frequently too. This started years before I was diagnosed with PBC. I had my blood sugar tested, and the doc said I was fine. He said some people just urinate more frequently than others.

[1978louisa]

Are you taking Urso? I was diagnosed approximately a year ago and I pee more since being on the medication. I'm 34, with no kids and very early stages of pbc, so not putting it down to anything else. But still if you are concerned I would go and see your doctor. No harm and will put your mind at ease.

[Perkywerky76 in reply to 1978louisa]

Hi, yes I'm on the urso - been taking it for about 8 months now. I'm 36 with two teenage girls and my doc thinks I'm borderline cirohsis , I just seem to wee loads, especially at night... I sometimes go nearly ten times! It's not helping my fatigue getting up that many times. I think I will go see my consultant again as my next app isn't for 3 months !! Thanks for your replies

[mumofthree]

Hi Perkywerky76

My sister who does not have PBC or Diabetes (as far as we know) was finding like yourself the need to visit the toilet frequently during the night. Her GP told her she had an over active bladder and prescribed her some medication which has helped her immensly. I'm not sure the name of the medication but will try and find out for you. In the meantime have a word with your GP.

Good luck

[Hidden]

I noticed myself after taking the urso I started weeing more also. I thought at the start just an initial side-effect as I suffered heartburn and a bit of bloating for a few mths after starting the tablets Dec 2010.

Over time this settled. I've not got anything like diabetes and my kidneys are just fine plus no abnormal bloods at all on those either.

I'm still fine after I've gone to bed at night I do get up and pop to the loo as I tend to wake up if I am on an itchy night and I think for me the maximum of getting up 3 times is now down to habit as I get a bit of respite from the itch in doing so as I doubt I would just get up if I was awake with no itch. I don't get the urge to go to the loo or feel I have to go, as said think for me it is just a habit.

[Hidden]

I get this as well and some nights am up more than others, I didn't put it down to urso, but now thinking about it at the moment i am having a week break from urso as it starts to make me unwell after a time, and this week I am not trailing back and forth to the loo as much. I am now down to taking just one urso a day as the three I was prescribed make me feel really ill, I must say I would rather not take any urso as I feel loads better without. I will mention this when I get my next appointment at the hospital.

Linda

[clau]

Perkywerky76,

I am Brazilian and I will translate my text by google, OK?

I believe the bear makes people more urunaram, does it work as it improves their bile ducts. You'll notice that your urine will be clearer. That's a good sign. Perhaps the high number of times that you're waking up at night to get better. I'm taking Bear for over 4 years. And I realize that every day my body responds better.

[mumofthree]

Hi Perkywerky76

As promised earlier I have now found out the name of the medication the GP prescribed my sister for her over active bladder - Oxybutynin Hydrochlorid (5mg).

[Perkywerky76]

Thanks ever so much for finding out and getting back to me, much appreciated! I am seeing my GP tomorrow so will discuss then

[bwswave]

I too have this problem, I have PBC/AIH for 11 years. and diabetis for 9 years, I am constantly needing to be near a toilet, and up 2 or 3 times in the night, travelling is a nightmare for me, If I am going anywhere which takes more than half an hour, I check for toilets on route, and, or, stop drinking or eating anything like porridge (the milk) 3 to 4 hours before I leave, leaves me very thirsty, but feel safer then.

[zipitydoo in reply to bwswave]

hi bwswave,

hope you dont mind me asking but do you take anything for your diabetis. Just wondering with so many meds being bad for the liver.

[bwswave in reply to zipitydoo]

Hi zipitydoo,

No I don't mind you asking. I don't have to take anything, it's just diet alone, when it was first discovered that I had Diabetis type 2, 8 years ago, they did at first put me on some meds, but, my blood sugars got so low even after eating, I was taken off that. There was another medication for which I was told that my liver wouldn't be good on that. My diabetis is a result of taking steroids from when I was first diagnosed with AIH/PBC, they also caused me to have cattaracts in both eyes, which just came on suddenly. Had them both operated on.

There is a lot of medications bad for us to take, even some antibiotics, some doctors and dentists have to get permission from my consultant at the hospital, before prescribing some. I cannot take many paracetamol, now my liver isn't regenerating properly, so when in pain, I stay that way, I can only have 1 paracetamol in 1 day. But, I will only have 1, because I feel so sick otherwise.

[zipitydoo in reply to bwswave]

Thank you for that. I didnt know cataracts could be down to taking steroids. i was on steroids a few years back and at my last eye check was told I had cateracts forming. At the age of 51 I wondered why. i have just found out I have crossed over from being glucose intollerant for the past few years to becoming diabetic. I see the nurse tomorrow but had been looking online at the diabetic meds and none are really kind to the liver apart from the insulin. Will have to see what she says.

perhaps diet will be enough for me but with already excluding gluten, and having to have a soft diet, it doesnt leave much else to eat.

[bwswave in reply to zipitydoo]

I'm sorry to hear that, hopefully though, you will be ok with just diet alone.

Yes, steroids can be so good yet so unkind, I was quite bad with the AIH, and the consultant kept me on a high dose of steroids for some time, when he reduced the dose my liver got worse, it was back and forth like that for 10 years, but, the side effects (diabetis, cattaracts) started after 3 years of being on them. I was at work at my computer one day, and suddenly couldn't see properly, I tried everything, in the end to cut a long story short, went to an eye specialist and he told me that being on steroids long term has brought the cattaracts on immediately, and I'd only had my eyes checked 3 months before with no cattaracts at all. Unbelievable.

Your cattaracts could take years before they get bad enough to operate on, short bursts of steroids may not lead to them getting too bad.

[zipitydoo in reply to bwswave]

How awful for it to come on so suddenly like that. it must have been very worrying for you. Our eyesight is so precious. I was on the steroids for just under a year so it might not be related,

[bwswave in reply to zipitydoo]

That's right, I suppose it dosen't happen to everyone either, side effects are funny some people get them, some people don't . I hope you get on alright when you see the nurse. xx

[littlemo]

Hi there frequency in micturating (i.e.weeing) can be down to something as simple as a urinary tract infection( often referred to as a uti) or an irrritable bladder. I see you are already planning to see the doctor so he/she can rule these things in/out through tests. I have a bit of experience with this personally and professionally. So I would advise people to watch their caffeine/fizzy drink intake (specially after about 6-7pm), these things irritate the bladder making u want to go to the toilet more frequently. It is a good habit to get into drinking plenty of still water at least 1-2 litres a day this can actually improve the elasticity of the bladder meaning you can hold more fluid and not have to run to the loo so frequently and the water also helps to flush out bugs/toxins. I have had a couple of uti's over the years mainly when I was pregnant/ when I was a little bit run down and have had to get antibiotics which I hate taking thus my advice on how to prevent them of possible, I also try to wat well and do take a multi-vitamin daily. Hope you get the problem sorted soon not a pleasant thing to have to live with.

[Perkywerky76 in reply to littlemo]

I know it's not a uti as I have had that before a few times. There is no pressure or pain etc it's just I seem to wee alot more than I did and loads at night. But thanks for your reply

[sjr1]

i too wee a lot more since starting urso, but more embarassing is flatulance!!

it is terrible since i started taking it!!!

anyone else have this problem????

[Hidden]

I just returned from the Doctor's office and one of the things we spoke about was urinating frequently at night. He said that when you are in bed at night the fluid that has gathered in the extremities during the day will be filtered back through the kidneys and be eliminated during the night. This is a normal function of the body. The more you fluid you retain during the day the more you expel during the night. I am on a blood pressure med that is combined with a diuretic, which may be a contributing factor in my case. I was told to take the BP med later in the day and see if this works better and to also make sure I have enough sodium in my diet. I have really cut back a lot on sodium. I have been drinking more and was told to keep it to 8 glasses of fluid a day and not to over drink. In order to flush out toxins from my body, I have to admit to drinking more than the 8 glasses (which includes tea, coffee, juicing, water) a day. Usually the diuretic should start working within 3 hours of taking it, but I am not normal and mine may be delayed, so now I will take pill at night and watch the results.

Bottom line...everyone is different, so be aware of changes in your body and stay in touch with your medical team. Best regards, Judi