I have just joined so thought I'd introduce myself, I'm 35 and was diagnosed with PBC in 2009 after tests showed Derranged LFT's and I was referred for a Liver biopsy. Funny thing is, I had only gone to the GP's as I had slight breathing problems and a little abdominal pain.
When the doc called me to confirm diagnoses the only word I heard was 'cirrhosis' and I completely freaked out. I then made the mistake of googling PBC which freaked me out even more as the first site I went on told me life expectancy was about 3-5 years..
Luckily my specialist sat me down and told me not to pay too much attention to anything that wasn't related to either the PBC or Liver Foundation sites, he prescribed me Ursofalk and advised me to modify my diet slightly and that I should be able to lead a relatively normal life.
Over the past 3 years I have also developed Sjogrens and Raynauds and I have found that the fatigue and swollen glands has increased along with the joint pain but these things have developed relatively slowly so I am just about able to deal with each one as they come and try and adapt.
I have read a few blogs on this site and they seem to offer great advice and be quite reassuring and friendly, so though I'd join and say Hi