doxepin: Hello Everyone, I am hoping this... - PBC Foundation

PBC Foundation

9,480 members8,355 posts

doxepin

LorraineLouise profile image
3 Replies

Hello Everyone,

I am hoping this post finds you all, doing the absolute best that you can. I just wanted to share some thing with all of you who suffer from PBC.

My dermatologist put me on the low dose of a drug called doxepin. I started taking it about six weeks ago I am on 10 mg capsules at bedtime. I didn’t know about this drug. But she told me she had one other patient with PBC. And it helped her tremendously as well. It’s a very low dose anti-depressant, and a histamine which helps with the dreaded itch, And I also sleep for 6 to 7 hours straight. Which for me was unheard of. Prior to taking this medication.Nothing else has ever helped me before. Of course I asked my Hepatologist about it, first, before ever starting it.

So I’m sleeping better at night,I have no itch. I just thought, it is something you may ask your doctors about. So far , it has not affected,my labs in a negative way.

Just putting it out there, for possibly something that you may discuss with your own doctor. And it could help you too.

Big hugs,

Lorraine Louise

Written by
LorraineLouise profile image
LorraineLouise
To view profiles and participate in discussions please or .
Read more about...
3 Replies
Sister65 profile image
Sister65

I was just prescribed doxepin as well due to itch and a horrible skin condition which recently developed. Dermatologist doing biopsy of a few lesions to determine what it is. Still need to talk to hepatologist about it. Was you doc ok with it? I also take it at bedtime and sleep has been undisturbed - finally.

LorraineLouise profile image
LorraineLouise in reply toSister65

Sister,

Yes, my Hepatologist was absolutely fine with it. In fact, for some reason it has helped my liver enzymes go down as well. It helps me sleep. And I have had absolutely no itching, since I started taking it.

Hope it works as well for you. Best of luck. Let me know how it works for you I know so many people on here suffer from the edge and couldn’t get no relief. I wish more doctors would try doxepin.

I’ve been on it for over a year now with no negative side effects. Only positive.

Lorraine Louise

LorraineLouise profile image
LorraineLouise in reply toSister65

I forgot to say, I had several biopsies, and they could never come up with anything. So the saxophone was just a trial for me and get the trip.

Not what you're looking for?

You may also like...

Very Frustrated

This afternoon I went to my PCP. Just to "see" if I have something else besides PBC itch. She said...
krazy-girl profile image

Questran Light, (cholestyramine) and other meds - timings of taking advice.

I finally have given in and requested Questran Light, no proper sleep for over a week no with the...
Jo_Br profile image

Itch

Hi there. Just wondering if pbc itch has a rash. I have a rash on my abdo /chest/ upper thighs and...
Nellies47 profile image

Low dose naltrexone

Has anyone been given low dose naltrexone for PBC or any other autoimmune disease. I have been...
flora profile image

PBC and Itch

Hello! If you believe that your itch is caused by PBC or taking Urso, can you describe, what sort...
iagra profile image

Moderation team

See all
PBCCheryll profile image
PBCCheryllAdministrator
janethomas profile image
janethomasModerator
Cupcake1971_ profile image
Cupcake1971_Moderator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.