doxepin: Hello Everyone, I am hoping this... - PBC Foundation

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doxepin

LorraineLouise profile image
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Hello Everyone,

I am hoping this post finds you all, doing the absolute best that you can. I just wanted to share some thing with all of you who suffer from PBC.

My dermatologist put me on the low dose of a drug called doxepin. I started taking it about six weeks ago I am on 10 mg capsules at bedtime. I didn’t know about this drug. But she told me she had one other patient with PBC. And it helped her tremendously as well. It’s a very low dose anti-depressant, and a histamine which helps with the dreaded itch, And I also sleep for 6 to 7 hours straight. Which for me was unheard of. Prior to taking this medication.Nothing else has ever helped me before. Of course I asked my Hepatologist about it, first, before ever starting it.

So I’m sleeping better at night,I have no itch. I just thought, it is something you may ask your doctors about. So far , it has not affected,my labs in a negative way.

Just putting it out there, for possibly something that you may discuss with your own doctor. And it could help you too.

Big hugs,

Lorraine Louise

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Sister65 profile image
Sister65

I was just prescribed doxepin as well due to itch and a horrible skin condition which recently developed. Dermatologist doing biopsy of a few lesions to determine what it is. Still need to talk to hepatologist about it. Was you doc ok with it? I also take it at bedtime and sleep has been undisturbed - finally.

LorraineLouise profile image
LorraineLouise in reply toSister65

Sister,

Yes, my Hepatologist was absolutely fine with it. In fact, for some reason it has helped my liver enzymes go down as well. It helps me sleep. And I have had absolutely no itching, since I started taking it.

Hope it works as well for you. Best of luck. Let me know how it works for you I know so many people on here suffer from the edge and couldn’t get no relief. I wish more doctors would try doxepin.

I’ve been on it for over a year now with no negative side effects. Only positive.

Lorraine Louise

LorraineLouise profile image
LorraineLouise in reply toSister65

I forgot to say, I had several biopsies, and they could never come up with anything. So the saxophone was just a trial for me and get the trip.

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