Hair Loss: Hair loss. Alarming increase in... - PBC Foundation

PBC Foundation

9,480 members8,349 posts

Hair Loss

Cressy profile image
15 Replies

Hair loss. Alarming increase in the last few months - any advice please?

Written by
Cressy profile image
Cressy
To view profiles and participate in discussions please or .
15 Replies
butterflyEi profile image
butterflyEi

Hi Cressy, my hair loss turned out to be a different auto immune disease called lichen planopilaris. Please try to get an appointment with the dermatologist. The GP may be able to get your zinc level checked as that was the first blood test taken by the dermatologist which found my levels to be low. My dermatologist also recommended using 5% minoxidil which I tried for 18 months but sadly has not made any difference to me however it works for many. There is a foam which I found easier to use and if you decide to try the minoxidil shop around as it is quite expensive. I believe at the time I purchased mine from Kirkland.

Try to find a shampoo that has no impurities. I have started using Palmer's cocoa butter but there are many other shampoo makes without parabens.

Cressy profile image
Cressy in reply tobutterflyEi

Thanks butterflyEi, I appreciate your advice. I have been using Liz Earle hair products for some time so don't think it is that, however I have had more than the usual amount of stress recently so I wonder if that is the cause and nothing to do with PBC or Urso. Time will tell I guess.

Raoul01 profile image
Raoul01

I started taking Biotin supplements for hair loss. It is supposed to help hair, skin, and nails. PBC has made my skin so dry so I have that itching sensation. My research suggests it takes 1 to 3 months to notice a difference. I am on my 3rd week. Fingers crossed.

Cressy profile image
Cressy in reply toRaoul01

Fingers crossed for you too. Sincerely hope it works. I think I will give it a try, can only help. Many thanks Raoul01.

Stub007 profile image
Stub007

My heart goes out to you and others with this, but I am an over 80 male with scant hair left on my head, but I grow a healthy beard. I find very little baldness in the males of my family and don’t know for sure what caused mine.You have received some good advice from the previous two respondents. Good luck!

Don

Cressy profile image
Cressy in reply toStub007

Thanks Don. I feel lucky to belong to this community, I have very little to complain about compared to others but they are all so supportive.

Wocket profile image
Wocket

I had quite a lot of hair loss but I managed to stop it with olaplex 3 which worked from first use. I still shed a little but nothing like what I did.

Cressy profile image
Cressy in reply toWocket

Thanks Wocket, I will look into it.

Krkkrk profile image
Krkkrk

I also had a lot of hair loss the first months after starting urso . I was in a panic.

I took biotin what is in fact vit B8.

It helped for me enormously.

I took quit a high dose and it took a few months to have a good result. Now my hair growth back as normal. I stil take biotin but not always every day and in a lower dose.

Excuse me for the writing mistakes. My mothertongue is netherlands

Cressy profile image
Cressy in reply toKrkkrk

Thanks so much for your reply. I have been on Urso for over 10 years and already take vit B complete but I will certainly give Biotin a try.

Cressy profile image
Cressy in reply toKrkkrk

Hi Krkkrk, no need to apologise, your English is excellent. I already take Vitamin B complete but Biotin has worked for you and been recommended by others so I will definitely try it. Many thanks.

mrspeffer2 profile image
mrspeffer2

Morning....So many factors go into hair loss. Age, diet, medications, stress, hair products.

I tend to not eat much and am not able to digest meats/poultry, so finding essential amino acids is tough for me. After a year of pandemic diet, my hair has thinned and became fine.

So, now I'm making sure to get at least 60 grams of protein daily. Thank goodness I can handle Skyr and hard boiled eggs. I have been doing scalp massages with amla oil which seems to help. Started using a scalp scrub with a massager, a good clean Amla shampoo and conditioner. I also use a chelating shampoo....All by HAIRPRINT. I've ditch cheap hair products and found some that do not bother my scalp. Is this perfect, not really, but by hair seems to be livelier than a month ago. Be well

Cressy profile image
Cressy in reply tomrspeffer2

Many thanks mrspeffer2 for your information and advice. You are so right about the factors that contribute to hair loss and I am starting to think that mine might well be stress brought on by family health and my own - not relate to PBC. I will take onboard what you have said and wish you well.

mrspeffer2 profile image
mrspeffer2 in reply toCressy

My pleasure. I just watched an interesting video put out by Hair La Vie. I was so impressed that I researched it for over an hour. Finally bought the supplements, mask, and shampoo and conditioner. Returned the HAirprint stuff and purchased a difl erent hard water detox shampoo from Noughty....I'm a bit of a product junkie, but extremely hopeful this will do what it says. My beautiful thick, almost coarse hair is now thin and fine.....NO BUENO!!!!! Let me know what you think.

Be well 🕉️

Cressy profile image
Cressy in reply tomrspeffer2

I've had a look at the Noughty website and like the fact that its cruelty free and reasonably priced so will definitely give it a try. Hope it works for you and you get your beautiful thick hair back!Stay well.

Not what you're looking for?

You may also like...

Hair Loss

Hello Was wondering if anyone else has experienced hair loss, I was diagnosed with PBC last August...
LucyH16 profile image

Hair loss

hi, Has anyone experienced hair loss while on Urso?

Hair loss

Hi all does anyone suffer with hair loss I seem to be losing a bit more than usual was wondering if...
1959L profile image

Hair Loss

Does anyone have an issue with hair loss ? Could this be related to PBC or medication? Over the...
CathieG profile image

Hair loss

Hello all! My hair started thinning about a year ago but much worse the first of the year. I...
NotorDJP profile image

Moderation team

See all
PBCCheryll profile image
PBCCheryllAdministrator
janethomas profile image
janethomasModerator
Cupcake1971_ profile image
Cupcake1971_Moderator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.