55crousehouse pbc or not

[55crousehouse]

Alkaline phos.150 AST 49 ALT 48 immunoglobin1490 ANA positive IgG1510 kinase 58 ANA titer 1:160

[EileenUSA]

pbcfoundation.org.uk/upload...

Hi and welcome,

Link above is guidelines for diagnosis and treatment of PBC. It's a great starting document provided by the UK PBC Foundation, (they sponsor this site)

Has your doctor given you a diagnosis? I know others will reply- sometimes there are time delays as members here are in UK and across the pond inUSA.

[55crousehouse in reply to EileenUSA]

He said mild pbc. My health chart says cirrhosis active

[EileenUSA in reply to 55crousehouse]

Do you have copies of your blood work results?

I don't know what is meant by "mild" case.

Perhaps the dr. means they believe that you are in early stages of PBC...

It is in many cases a slow progressing disease. Are you on URSO?

Are you seeing liver specialist yet? Many drs. do not know about PBC as it is rare. And best to have hepatologist or GI doc that is up on PBC.

Here's another helpful document from PBC Foundation U.K.

It helps you understand the blood work numbers and what is most important to monitor inPBC

pbcfoundation.org.uk/newly-...

[55crousehouse in reply to EileenUSA]

I go to GI doctor my lab results are online at Duke 2013 when it first started now i go to charlotte

[55crousehouse in reply to EileenUSA]

I am not on ursol

[EileenUSA in reply to 55crousehouse]

Hi

I'm typing on my phone- so a bit hard for my old eyes-

I'm not sure I am understanding your situation--

Was your AMA M2 test positive? this is the anti-mitochondrial antibodies blood work that points to PBC.

[55crousehouse in reply to EileenUSA]

Yes

[EileenUSA in reply to 55crousehouse]

Hello,

Have you asked the doctor why you are not given URSO? As I understand it -- if Alk Phos is elevated and AMA-M2 is positive, the PBC diagnosis is given.

And, early intervention with URSO has shown to slow progress of disease. I would contact dr and ask why no URSO?

Do you have access to a patient portal for emailing questions? I would push for this answer.... unless there is something I am mis -understanding from your post above..

[55crousehouse in reply to EileenUSA]

I also have numerous cysts on my liver and pancreas. Don't know why

[55crousehouse in reply to EileenUSA]

Thank you. I will

[55crousehouse in reply to EileenUSA]

Ama negative. ANA positive

[55crousehouse in reply to EileenUSA]

I'm sorry I was wrong my ama was negative but my ama was positive does this rule out pbc

[EileenUSA in reply to 55crousehouse]

pbcers.org/definitely-pbc/

Hi- this link might be helpful Regarding AMA result and ANA result and possible diagnosis.

Have you discussed results with liver specialist?

[55crousehouse in reply to EileenUSA]

Yes he says mild pbc

[ninjagirlwebb in reply to 55crousehouse]

If you have pbc, you need to be on urso.

[55crousehouse in reply to ninjagirlwebb]

Thank you

[55crousehouse]

How bad is the itch and where do you itch

[Curedreamer]

Itching is really bad... it’s usually on hand and feet but sometimes it’s all over the body. Urso should help but in my case it hasn’t really. In all fairness I was under therapy for my vasculitis anca with cyclophosphamide and also with urso for the autoimmune pancreatitis and overlap liver syndrome (autoimmune hepatitis and PBC)