No one went over my report with me when I w... - PBC Foundation

PBC Foundation

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No one went over my report with me when I was discharged.

Jennyhadenough profile image
6 Replies

Nothing was said about my kidneys. My dr told me to get a mri once a year to make sure the cyst wasn’t changing.

I knew about the angiolipoma but the scarring is new to me. I took a snap shot of my record when my nurse turned her back. She said I have to order my records. What does this mean

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Jennyhadenough profile image
Jennyhadenough
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6 Replies
mjmarmon profile image
mjmarmon

When she said you have to order it, she just means you have to order a copy of your medical records. They have you sign a release, even if it’s just for yourself. It’s because of HIPPA regulation.

Jennyhadenough profile image
Jennyhadenough in reply to mjmarmon

I’m trying to learn what the kidney scarring means

Sona_akb profile image
Sona_akb

Hi

There’s nothing to worry about kidney scar. It means that you’ve experienced severe urinary infection or urinary reflux in past when being so young. It won’t hurt you at all and won’t alter anything in your health situation.

I also have this in my left kidney.

Sona_akb profile image
Sona_akb

Did you know that urinary infections are correlated with PBC.? Well this is a proof

Jennyhadenough profile image
Jennyhadenough in reply to Sona_akb

Dr says that I have one now but I don’t feel it

Candy12 profile image
Candy12 in reply to Jennyhadenough

Not all UTI,s cause the burning pain of cystitis, I had one that was found post operatively some years ago.

It was only picked up when my GP got the post operative report from the hospital and he called me to pick up a prescription, that was after having it some six weeks.

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